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Possible thyroid disorder?
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Rub1983 posted:
Hi everyone,
I am a 28 year old female. I've always had weird symptoms throughout my life but things seem to be getting worse lately and I'd love some feedback from people who have thyroid problems so I can get a gauge as to how likely it is that I have one. I am currently waiting to get an appointment with an endo, so I'll be getting a professional opinion too, I'm just curious. The thing that's confusing me is that the symptoms for so many disorders seem to be the same-- I don't know if its an issue with my reproductive hormones, thyroid, or something completely different. Or if I've got a number of different things going on at once.

In any case- here are my symptoms, I know it's a long list-- and lots of these things have been going on for a while. I just attributed lots of them to having an anxiety problem and being an emotional, hormonal female-- but now I'm thinking it's something else-- tell me what you think:

-Night sweats
-Sweating while cold
-Intolerance to heat
-I can't hold my hands still (as in, if I hold them out and try to keep them still, they shake)
-Getting my period every two weeks for the past few months.
-My breasts recently went up a size in the past few months also, but I've gained no weight elsewhere.
-Severe PMS (maybe bad enough to be PMDD? But this has been a problem for years) and terrible, painful periods.
-Heart palpitations, randomly. I can just be sitting at the computer getting work done and my heart starts pounding insanely.
-Shortness of breath- usually accompanies the palpitations.
-Bouts of nausea for no apparent reason.
-Pains in my neck
-Swollen glands
-Random bouts of numbness in my arms and legs.
-I am often agitated or insanely emotional without any cause.
-Muscle soreness-- always. But different muscles. Lately it's the palms of my hands that have been sore. I have no idea why, it's very odd.
-I also go through periods where my hands are so achy that I can barely write.
-My memory has gotten very foggy lately-- I am a grad student, so this is very bad.
-Sometimes I just glaze over. I feel like I am in a cloud. It's like my brain just shuts off. Others notice it and ask what's wrong with me.
-Inability to concentrate.
-Ridges in my fingernails, and they're very brittle (didn't know that could be a sign of something bad until I read it somewhere recently).
-Headaches.
-Sometimes I am so weak I feel like I can barely move or keep my head up-- other times I have inexhaustible amounts of energy.
-Also, random seizure-like or migraine-like episodes when I get my period-- my vision will go out and I collapse and shake with excruciating pains in my stomach.

Any thoughts, suggestions, or people with similar symptoms out there? I have been going to doctors for years trying to explain these things to them and they brush it off as me just going through some hormonal change-- but, it's been YEARS that most of these things have been happening, so I honestly can't believe this is normal at all. I do realize that separately some of these symptoms and signs seem just average, but together they've got to point to some bigger problem.

Thanks

-C
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DOGDANCING_TCOS responded:
Get checked for hyperthyroidism. (graves disease) Insist on having a full thyroid panel being drawn.

you: I am currently waiting to get an appointment with an endo,

If you do not have a set appt call them back and tell them you having heart palpitations and find out how long the wait for an appt is going to be.

If you don't have a set appt call around to all the endos and see who can get you in the quickest.

huge long wait?/no appt set - go to an urgent care and have them draw a full thyroid panel to see where your labs are. Also a cholesterol level - its usually elevated in cases of hyperthyroidism.

pisses me off when doctors poo poo lists of symptoms. gahhh. Hope you can get in and helped soon.

Peace be the journey

Paja
 
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Rub1983 replied to DOGDANCING_TCOS's response:
Thanks for the reply. I got my thyroid hormones looked via a blood test from my GP and they showed nothing wrong. But, it wasn't an in depth screening, just the T3, T4, and TSH. My cholesterol is also fine- 151. But from all I've read, it certainly seems there is something amiss with my endocrine system. Perhaps it's not a thyroid issue, but some other hormone thing. I have to call the endo again today. I am holding out for this specific one because he was highly recommended by a family member who had severe issues with her pituitary gland that no other doctor diagnose figure out-- and he actually accepts my insurance.

I have really bad insurance (thankful for it though), Medicaid, every hack doctor takes it, so to find the good ones takes a bit of research and asking around. I know a crappy endo would just look at my blood work and dismiss everything. Over the years I've had so many symptoms that are abnormal but doctors don't seem to take you seriously unless you look awful or incredibly sick. Maybe next time I walk into an office I should just collapse dramatically. They tell me I'm stressed and having anxiety issues and send me away. I think my age probably has something to do with it. I've gotten the "you're too young to have x problem" from a bunch of people too. Argh!
 
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SCFarina replied to Rub1983's response:
Please let me know if you get anything useful from your new endo. I have the same problem - tests reveal nothing, even though I have strong symptomology AND a strong family history of thyroid disorders, and no doc (GP or specialist) seems to want to dig any deeper since the tests are all normal. But my constant cold sensitivity, dizzy spells even when I lay down, etc., are anything but normal!
 
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kiznkitten responded:
Dr John C Lowe is the formost researcher about what you describe. If your thyroid labs are normal, you may have Thyroid Hormone Resistance and its difficult to get someone who will diagnose and treat it correctly. Your muscle aches may be fibromyalgia, a disorder linked to to low thyroid hormone levels. Go to the question and answer section of Dr.Lowe's website and then check out Janie's Stop the Thyroid Madness website.
http://drlowe.com/
http://www.stopthethyroidmadness.com/
 
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kiznkitten responded:
Re-reading your symptoms I keep thinking Fibromyalgia. It is caused by too little thyroid hormone. Dr Lowe is the foremost researcher for this condition. I have Peripheral Tissue Thyroid Hormone Resistance. It is a rare genetic disorder, but the most common cause of Fibromyalgia. Here's the best book on the subject:
The Metabolic Treatment of Fibromyalgia, By John C. Lowe, McDowell Publishing Company Boulder, CO [br>ISBN 0-914609-02-5 Hard Cover; 1,260 pgs. $99.95 [br>[br>"This award-winning book, The Metabolic Treatment of Fibromyalgia, is considered by thousands of readers—patients and doctors alike—to be the most thorough, well-researched, and overall important book ever written on four subjects: fibromyalgia, hypothyroidism, thyroid hormone resistance, and the clinical care of patients with these diagnoses." http://www.mcdowellpublishing.com
Thyroid Blood tests are NOT accurate for diagnosing Thyroid problems! You symptoms are the key!


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