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Just diagnoised with PCOS
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beccarn09 posted:
Hello everyone..This is my first time posting here..But by reading everyones post you all seem like wonderful and helpful people!! I am 26 and was married in November. Stopped taking Birth control in November and have not had a period since. I figured this was normal after being on birth control for 8 years. I did make an appointment about 2 months ago with OB/Gyne. She did some blood work to check my thyroid and hormone level and it all came back normal. She did prescribe Provera. I took that and nothing happpend. Went back to doctor a week ago and she gave me another round of Provera (still waiting on period stopped taking on tues) and did an U/S. My doctor called me yesterday and told me that it showed I had PCOS...I feel like a have A MILLION questions. I am an RN so i feel like i should know this stuff but I have no idea. I have no current health problems and am not overweight. I am confused by this diagnosis because it seems like all the research I have done it says to lose weight and take care of your BP issues or keep your blood sugars more normal if diabteic...Well I have none of this probelms and looking for some help!! I am very Anxious, scared, nervous, etc...We really wanted to start trying for a baby but it has been very difficult with no periods. I think I am just looking for some reassurance or help from you guys on where to go from here...I have clomid that she wanted me to try if I start my period this month, i was going to do it for one month with blood draws throughout to make sure my body is ovulating...I feel very discouraged right now...Any advice is welcome!! thank you
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prayforamiracle responded:
I first want to apologize for not answering sooner. I have had a very hectic week and I haven't had a chance to check in. I'm so happy you decided to join us, but sorry for the diagnosis. I'm guessing the doctor has diagnosed you with PCOS due to the absence of your period and the ultrasound. That is exactly how they diagnosed me with PCOS. I had blood tests and I'm not insulin resistant like a lot of PCOS patients. I remember when I stopped taking birth control pills, I have the withdrawal bleeding and then nothing else for 11 months. It was horrible. Now knowing what I know now, I wish I wouldn't have let it go that long. I missed a lot of valuable time. Hopefully, you will have success with the Clomid. I took Clomid about four times and sometimes didn't respond and the times I did it wasn't a very good response. I will have to move on to injectables next, but can't start just yet due to work. I look forward to chatting with you and hope we can't help with all the support you need.
Prayforamiracle-Me(37)PCOS Dh(44)MFI TTC since 11/06. Only pregnancy ended in loss in July 2007. On 1500mg of Metformin. 1st IUI 1/12=BFN, 2nd IUI 2/12=BFN
 
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beccarn09 replied to prayforamiracle's response:
Thank you for answering...I totally get that we all have very very hectic lives...I know I do I finished my first round of clomid yesterday. I go on Monday for my 2 hour glucose test and some other labs to check my hormones after taking the clomid. Its just a waiting game for a couple weeks. I didn't think I should have went to the doctor when I did because i knew people had said it can take a long time to get your period back after stopping the pill, but I am nurse and was talking to one of the doctors at work and she suggested I make an appointment...Just to make sure everything is ok...Then I got that diagnosis, so I am glad I didn't wait much longer...I am hoping the clomid will work, I didn't have any real side effects from it...decreased appetite but thats about it...Crossing my fingers that I will be lucky with just one round
 
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prayforamiracle replied to beccarn09's response:
Wishing you good luck for a successful Clomid cycle and great test results. Let us know what you find out.
Prayforamiracle-Me(37)PCOS Dh(44)MFI TTC since 11/06. Only pregnancy ended in loss in July 2007. On 1500mg of Metformin. 1st IUI 1/12=BFN, 2nd IUI 2/12=BFN
 
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KMcEntire responded:
Welcome! Just reading your story brings back a lot of memories and similarities with my background. I have just about the same problem as you are experiencing and was diagnosed with PCOS after coming off of BCP for 5 years. I truly believe that all those years of BCP were a major cause in developing the cysts. It makes sense though, BCP holds you back from ovulating so you don't get pregnant, then they can't go anywhere and turn into cysts. I may be completely wrong, but so far that's the conclusion I've come up with. After months without a period I tried Prometrium and that didn't work, but Provera did for me. Maybe one works better for you than the other? Wishing you all the best
Me (24)(PCOS) and DH (24) TTC our first for a year and a half. Tried Metformin, Femara, Acupuncture, herbs, ovarian drilling... looking at other options.
 
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beccarn09 replied to KMcEntire's response:
I believe it was from Birth control as well. It makes me angry at myself because, I should have never taken it for that long. But I was in nursing school and trying to start a career. now of course that I want a child, its not happening, But I am trying to stay positive. I finished my first round of clomid Last friday. today is cd12. I did take a ovulation test this morning and it was positive...So I guess the clomid worked. I don't know though those tests are weird and hard to read. But one line was def darker then the other....so waiting and waiting...Do you think that I will need to take Provera every month then?
 
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KMcEntire replied to beccarn09's response:
You might. I did until I had a procedure where my OBGYN when in and laproscopic "popped" the cysts. But the plus side about taking provera was that you had some "control" over the cycle, you didn't have to wait days, weeks, months, for AF to arrive on her own. That's really good that you ovulated! And I agree with you, those tests can be hard to read. They make some simpler brands that give more "yes' or "no" answers. Best of luck, keep us posted!
Me (24)(PCOS) and DH (24) TTC our first for two years. Tried Metformin, Femara, Acupuncture, herbs, ovarian drilling... looking at other options.
 
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beccarn09 replied to KMcEntire's response:
Just wanted to give you an update...doctor said progesterone is to low...so I didn't ovulate with the clomid...I'm so discouraged...she said to try clomid again or go to a specialist?? What do u think I should do?? I don't understand why the ovulation test said I did?? Does clomid affect those tests? All my other blood work came back normal just the progesterone was to low. I need some advice on where to go from here.
 
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beccarn09 replied to prayforamiracle's response:
Progesterone came back low..she said I didn't ovulate with the 100mg of clomid..now what?? Specialist or try clomid again?
 
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CEB85 replied to beccarn09's response:
Sorry the clomid didn't work for you this time. I highly recommend a specialist. They can offer you more options. When I was first on clomid with my OB/GYN, I saw a different Dr. one day when I was getting some results and he said that he highly recommends a specialist to those with fertility issues. He and his wife went through the same things and said its just better to move on and not waste time. I thought since he, being an OB/GYN was telling me that I better listen. I'm glad I did too.
If it were me I would call an RE and see how long it will take to get your first appointment. I know some you wait weeks. If its going to be a little while I would make the appointment but then while waiting try to increase the dosage through your OB/GYN and who knows, maybe you'll never need the specialist but at least you have it in the plan.

Good luck to you.
 
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prayforamiracle replied to beccarn09's response:
I'm really sorry it didn't work this time. I have been there. My first cycle I didn't respond either. That dose was 100mg. The second I didn't respond and they had me to take another round in the same cycle. I finally responded the third and forth attempt at 200mg. The doctor wants me to move from Clomid, because at the dose of 200mg I only was producing one dominant follicle and my lining was thin. Thin lining can be a result of Clomid. Since this was your first attempt, I might give it another try. Possibly at a higher dose. You could always see a specialist to hear their thoughts. I so wish I would have made the decision to see the RE a lot sooner. Sending hugs and hope you are not too discouraged.
Prayforamiracle-Me(37)PCOS Dh(44)MFI TTC since 11/06. Only pregnancy ended in loss in July 2007. On 1500mg of Metformin. 1st IUI 1/12=BFN, 2nd IUI 2/12=BFN
 
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beccarn09 replied to prayforamiracle's response:
I got my actual progesterone level and it was 1.7....wow...that is really really low...It scares me. I talked to doctor yesterday and she said to try the second round then move onto the specialist...So that is what my game plan is right now...I feel like I have 500 million questions and I cant seem to get a straight answer from her...I don't know...First off am I really having a period?? When I take the provera to make me have a period..It is very very light...Like I don't even have to wear a tampon light...She says yes that is a period...So that is what I went off of to start the clomid...If that was not an actual period..wouldn't my other labs come back abnormal that they took throughout my cycle?? I am really confused by this....All other labs ook,,,except progesterone?? Thank you for responding...I feel very comfortable talking with you!! You are a blessing!!!
 
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beccarn09 replied to CEB85's response:
I did call the specialist yesterday...Just to see...And they said only 2 week wait..So I am going to do the round of clomid again this month and then wait and see what happens...From my understanding though clomid does not help bring your progesterone level up?? But she said she was not going to prescribe me any progesterone supplement?? That is super confusing to me...Because that is what keeps the baby right?? She said if I had ovulated and had a positive pregnancy then she would?? So confusing...My AF is supposed to start today...I haven't had a period on my own in 8 months so I don't know if it will come on own again?? I feel very discouraged...Its like come on body do what I want!!!
 
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prayforamiracle replied to beccarn09's response:
I hope that this time Clomid works. They will probably add progesterone to you either after ovulation(which I think this is the best bet, since you know your level is low) or once you receive a BFP. Keep us posted.
Prayforamiracle-Me(37)PCOS Dh(44)MFI TTC since 11/06. Only pregnancy ended in loss in July 2007. On 1500mg of Metformin. 1st IUI 1/12=BFN, 2nd IUI 2/12=BFN


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