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Long term affect of undiagnosed Type 1?
JenM7733 posted:
My husband was diagnosed with a "mild case of diabetes" when he was 16. The doctor he had at the time told him that it would go away with diet.

When he turned 32, he was officially diagnosed with Type 1 and had sugar levels 900+ (the meter stopped reading somewhere in the 900s). He's 41 now, has been insulin dependent for 9 years, but since then he has had a double bypass and has had back problems with herniated discs and such.

I'm curious though, what else long term can we expect for the misdiagnosis at 16? He has diabetic neuropathy in his legs just seems to have suffered since his diagnosis.

smip responded:
If he was diagnosed with diabetes at age 16 with type 2 diabetes, that was probably the correct diagnosis. If he had type 1 he surly would have had SEVERE symptoms before the age of 32. IF he lived at all.

When one takes insulin, it does not automatically make them a type one diabetic. Your husband probably let his diabetes go and did not do the right things to keep it in check. Unfortunately, this happends to quite a few type 2 diabetics. While I'm sorry about your husbands health problems, he was most likely not mis diagnosed. There are tests to see what type your husband is. His doctor can to a c-peptide and an autoantibody test if he wants to know for sure.

I want to make it clear to you that a type 1 does not produce insulin. While they can be in a "honeymoon" phase, I have never heard of anyone being in a honeymoon phase for over 30 years. A type 1 diabetic will die without insulin in just a few days.

I see no wrongfull doing by the doctors here EXCEPT that they didn't test him regularly to keep him in check. AND if your husband knew he was diabetic at age 16 and continued to live an unhealthy lifestyle.. that is no fault of the doctor either.

I hope your husband gets to feeling better soon.
arealgijoe replied to smip's response:
Sad to say... its not always that simple.

There is actually TWO type 1s, type-1a and type-1b.

Over the decades I have been labeled T-1, T-2, "other" etc.

I was in the hospital at age 14 and told I would have to go on insulin, but I got better. Then hospitalized again, same thing when I was 22 in the navy.

The first time the docs were surprised, the navy doc one morning said if I could pass a urine sugar test I could return to duty and "forget it ever happened". I wanted OUT of sick bay and was glad to forget it.

You might want to do a web search for diabetes type 1b. It's NOT type-2 and fits my diabetes best, if that is possible. I have also had several other autoimmune issues since my teens.

Docs, especially in the past did not always TELL their patients. I found out 40 YEARS after the fact the Navy KNEW I suffered a hearing loss while on active duty. I just learned for sure that my diplopia (started at age 18) was caused by Multiple Sclerosis, many many decades later.

Linda27889 replied to arealgijoe's response:
I was reading your story and was intrigued. I have type 2 but I also have a cousin that has been type 1 since she was a child and she's in her 40's now. She has explained some of her episodes and I am concerned. She states that at numerous times her sugar has been as low as 20 and she has severe weightloss and weighs about 90 lbs She says she cannot use things like Glucerna shakes or snacks because she says they go right through her. Even to the point of making her vomit. I believe she might have thyroid disease but her drs haven't done any other testing to confirm what is really going on but I personally cannot allow my sugar to drop below 60 without the shakes and nauseau so I grab some peanut butter or OJ to bring my sugar up. I don't think I could survive with a sugar below 50. Does this sond like some things that you have heard of? And are there any tests that you know a dr should perform to diagnose her better? Type2 in Washington
Coachbel replied to Linda27889's response:
My husband has had Type 1 diabetes for 40 years and he can not tell when his blood sugar drops anymore. I have checked his sugars at 20 before also. If she can not keep food in, she might need to ask her doctor about gasteopersis. This affects ddiabetics aswell. Many times they prescribe Reaglan for this problem.

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