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diabetic_lizzy posted:
Hi everyone, I'm new here. I've had type 1 diabetes for 20 years and am finally looking at my first real complication of diabetes. I am being evaluated for nephropathy and had a few questions. I just switched to a new endocrinologist and she wanted to do a complete physical as I was thinking I might have a celiac issue, but for now that's taken second base. I have been seeing my old endocrinologist for 3 years and every 4 months and thought everything was okay other than HBP due to years of diabetes.

I did a urine sample at my new endocrinologist's office and she called me personally to discuss my results, which, is never a good sign! Anyways, I have an extremely large amount of creatinine and protein in my urine, over 800 mg/dl and 300mg, respectively. I am doing a 24 hour urine collection to determine the extent of my issue. I have not ever had an unusual result prior to this other than trace/small amounts of proteins for over 2 years.

I am the daughter of a type 1 that died from end stage renal failure so I'm a little, well, a lot nervous about this entire process. My endocrinologist is demanding all my tests to be done as soon as possible and she's trying not to worry me, but I noticed the notes of concern while she was going over everything that I needed to do.

I'm just wondering if there's anyone here that's dealt with nephropathy. All of my diabetic friends have not and I'm just trying not to freak out.
Thanks for any insight you all might be able to pass on!
MrsCora01 responded:
Hi there. Sorry it took me so long to answer your post. I was dxd at age 16 (1978) with protein in my urine. With good control, better insulins, and careful management I didn't need dialysis until 2001. That's almost 25 years. With the introduction of ace inhibitors (don't be surprised if one is prescribed) in some cases the nephropathy never progresses.

I was on dialysis for a year and then had a transplant. Even if (remote if for you at this point) this is the route you go, know that it is do-able. Not fun, but you can still lead a good life.

Feel free to ask me questions.


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