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catsup posted:
i've had type 1 for 50 years. i am currently having a bad time of it due to gastroparesis. pain, nausea, bloating. i take Reglan for it but not too often as this drug can cause some serious permanent side effects.

anyone out there have this complication? advise, tips, commiseration welcome.

An_251728 responded:
I have gastroparesis & Type 1 sixteen years. Was given Reglan & developed the side effects--legs jerking involuntarily. Gave it up pronto! A "holistic" doctor recommended Betaine capsules (1 or 2 with meals.) Haven't tried it. I found adjusting my diet works for me. Eliminated solid fats (nuts, cheese, red meats, etc.) which really kick up my gastroparesis. Eat smaller meals, more greens & less starch/grains (potatoes, pasta, bread). Sometimes a two day liquid "fast" to clear things out. I put veggies in the blender & drink it (heated as a soup, or cold as a smoothie with stevia & small amount of fruit & maybe ginger or cinnamon or vanilla flavoring). Also clear broth & light vegetable soups. I use soy milk or tofu for protein instead of meat. (Soft tofu is great in smoothies.Even make pudding with it.) I soak chunks of medium firm tofu in spaghetti sauce or other light sauce. Improves the flavor & moves thru system much quicker than meat. Best wishes--don't give up! Sunny
catsup replied to An_251728's response:
thank you for your thoughtful reply. i've read that fiber is not a good idea, yet you eat greens and various veggies. i get into trouble when i eat too much fiber but i can eat a little bit.

so the Reglan is not causing side effects but i am on the watch for them. i try to take it as rarely as possible.

i will try the liquid diet, especially when it is kicking up. it can get so uncomfortable!

jamespreston responded:
I was diagnose t1 in 1972. For the last 12 years I have had every test imaginable done for the intestinal issues. It always feels like one good evacuation will help with everything, which of course, never happen. Tried reglan for almost two years and had some of the bad effects but didn't realize it at the time. I stopped taking it because it didn't work. I have no answers. Only questions. Hang in there just like I do. Jim

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I've been living with t1 for just about 30 yrs.

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