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Diabulimia/Connection
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theatricality42 posted:
Hi, I'm Laura, and have had type 1 diabetes since I was 9 years old (I am now 21). I have struggled with diabulimia for about a year and a half, but have had very poor control over my diabetes for years before that as well. I went to the doctor yesterday and my a1c was over 14. I'm just in a place of hopelessness right now...managing diabetes is hard, and on top of that, half the time I don't even want to manage it due to diabulimia. Is there anyone else out there in a similar situation? Even if you don't struggle with the eating disorder portion of it, I would love to have some people to connect to who understand what it's like to live with diabetes, and possibly even set up some sort of accountability system? Right now I don't know anyone with type 1 diabetes, and just feel utterly alone...
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mrscora01 responded:
Hi there. I was diagnosed with type 1 in 1966. I went through different phases during my life. I know how sometimes it's just so f***ing hard. As the years progressed for me it seemed like there was always more and more I had to do to take care of myself. When I first started, the norm was 1 shot a day. Then as things developed it was 2. And then glucose meters were introduced and so I could stick my finger as well as my butt. More work!

The good news is that if you take it one step at a time like gradually adding more testing to get better control and feel better, you will be fine. You will feel well and strong and capable of doing anything.

If you are looking for a lot of T1s, I would check out this website . There are a lot of us there at Diabetes Daily, some of us with 50 and 60 years of it. Best of luck to you.

Cora
 
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ForestBreeze responded:
Hey Laura,
Diabulimia is new term for me but have been in same situation off and on for a long time.

I have type I and use an insulin pump. Been the best part of my treatment!! This pump helps me take care of me...don't feel like I'm alone in managing diabetes. The pump is programmed with a basal rate and carb to insulin ratio, plus much, much more. I count carbs...this is not difficult to do. The bolus wizard option then tells me what my insulin bolus will be. Do you use a pump?

I test 5-6 times daily. This again is not difficult to do. I'm investigating the possibility of getting the CGM (Continuous Glucose Monitor). I'm told by my doctor that this device alerts the wearer of impending highs or lows, allowing treatment for either result.

The down side of diabetes is the possibility of complications...anything from kidney damage/failure, neuropathy and so on. These complications can lead to more doctor visits. My vocation suffers, physical ability suffers, mental alertness suffers. I decided long time ago that no one can take care of me like I can. I'm in control, not the diabetes.

Just a few words of encouragement. You are certainly not alone in your daily struggle with diabetes. (1) Do you visit a doctor on a regular basis (every 3-4 months)? (2) Do you see a diabetes educator? (This person was extremely helpful when I began using the insulin pump.) If you are not satisfied with the advice you get from your doctor or educator...get one you can trust. Remember, do your homework, know questions to ask, and don't look for someone who will just pat you on the head and say "poor woman, you've really got a hard life." If you are not seeing an endocrinologist, this could be best choice, especially one who specializes in diabetes treatment.
(3) Do you attend a support group for type I diabetics? (I ask this because many times a support group can focus on problems for type II's and not address the issues for type I's.)
(4) Are you into helping others? This will relieve you of the continual focus on yourself and great possibility you can help someone else.

For me, made it my goal: I don't want diabetes to define who I am. I have it, but I try to live life to the norm. My feelings could consume me, but what's better...feelings alone or taking action on those feelings.

Keep fighting!!!
Donna
 
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hollicat responded:
I have had diabetes for 28 years . I have been getting worst about control due to life issues like job lost for 6 years .. Depression gets worst as control goes down but I am under so much stress it makes it harder. I have the problem of over eating and binge eating when I get upset. Diabetes is a lonely disease. Very few of the general public have any understanding and even the doctors just want to pat you on the head and send you home with no help or answers to your problems. It is not easy to do every thing you are told you must do. I am just overwhelmed with all of it . I have a lot of weight gain , no energy and do not sleep well. I am on a pump. It went well for the firs few years but now it is merely a way to inject insulin and I can barley afford the pump supplies and test strips . This is my first time on this forum. Not sure if it is the right place for me , but I too and desperate.


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