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Extreme Vaginal Pain
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Welch5 posted:
My 16 year old daughter has been having extreme pain in her Vaginal opening since November 2012. We have seen 3 Gynocologists and 2 Urologists and are not any closer to a answer. It is taking over her life. She missed 18 days of school last trimester along with soccer and everything else that she loves. The frustration that she and I both have is taking a toll on us. Does anyone have any answers? She is not able to sit, wear certain clothes. I have found her in the fetal postion many times in tears. The doctors just keep giving her pain killers and I am afraid she will get addicted to them. She has also had an ultrasound that was normal and has been test for all STD's. HELP!! This is making life awful for her. Any advice would be helpful.
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bpcookie responded:
Hello Welch, What kind of pain is she having? Dull, sharp, burning, throbbing, pressure....? Also you say she is having pain in the opening of the Vagina, is there pain any where else, like the labia minora? Using the diagram below tell me exactly where she is having the pain.


Is it inside the opening or on the outside of the opening? Is the pain in one small spot, like the size of a dime or smaller, or is the area of pain in a bigger area, like the entire opening of the vaginal or perhaps the Labia Minor? Does it hurt to wear tight pants or under ware? Does it hurt more when she is hot or sweaty down there?

I ask these questions because I want to get a better idea of whats going on.

In my case, I have burning pain along the entire labia minora, all the way down to the bottom of the opening and the burning travels down my buttox to my inner thighs. What I have is Vulva Lichen Simplex Chronicus which is the thickening of the vulva skin which causes burning and the burning spreads to all the parts that I mentioned because of nerves.

Make an apt. with a GOOD Gyno and ask them to take a biopsy of the area which hurts her. Ask the Gyno if it could be Vulvodynia, Lichen Simplex, Lichen Planus,Lichen Sclerosis, or any other things of that nature. Giving her pain meds with out finding what the issue is, is pure ignorance on the part of the Dr.s

You may have to get a bit bossy with the Dr.s. They won't like this but sometimes its necessary. Just remember, your daughter (or you) is paying them, they are working for her.

For now, have her sit on a ice pack. Make sure she doesnt sit too long and make sure its not too cold because it can damage the skin. Have her take a nice cool oat meal bath. You can buy the oat meal bath packets at Walgreens or CVS Have her put some A and D ointment on the outside on the vagina, around the opening on the labia minora. Do not put it inside. Have her put a thin layer on after she uses the restroom. The A and D ointment will protect her skin. No bubble baths or douches. Change her laundry soap to one that is for sensitive skin with out any perfumes or dyes and don't use bleach on her underware. Change her washing soap to Dove bar soap. Other laundry soaps and washing soaps can cause irritation.

For now thats all I can suggest. I'm so very sorry that your daughter is going through this. I know the agony that she is in. This has changed my entire life, I can't go to movies, have friends over, go out to eat and I'm stuck wearing dresses. I hope the Dr.s can find whats wrong and can treat it. I wish her pain free days.


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