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Crazy health issues
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charmattack80 posted:
Hi All,


I hope I'm in the right place, I'm new here. My name is Lindsay and up until the last few months been a healthy 31 year old woman. It's kind of fuzzy about when the symptoms started but I can narrow it down to around October 2011. What I didn't notice then, I look back and realize things were slowly changing. My mood was worse, I didn't like the same foods I usually do, I had lost 5-8 pounds. In September 2011, I was 192 at the Dr. I'm 5'9.


Well, then, out of nowhere, in early january, my appetite completely disappeared, nauseated, I now I weigh 145-147, I went thru a horrible bout of fatigue that put me out of work on short term disability 4 weeks ago. I've had many, many blood tests for all kinds of things, upper and lower GI, brain MRI, nothing that the endocrinologist could find. When my fatigue got bad, I started having issues with dehydration and low blood pressure. I've fainted 3 times and been to the ER twice in the last three weeks. No answers.


This past week, I had a chest and spine X-ray and abdominal ultrasound that was normal. I have an appt. for an abdominal CT and pelvic ultra sound this week. My Dr wants a bone scan but insurance won't approve until everything else has been tried. It's not celiac or GI, it's not adrenal, my thyroid is testing normal, I have no real pain other than the general fatigue and a spot in my lower right abdomen, no one has found anything there. Both my parents, aunt and Grandmother had different types of cancer. I really don't know what it could be. The fatigue is a little better since I've been out of work, I've still got a foggy feeling in my head and some trembling. I'm forcing myself to eat but not gaining. I've tried to lose for 15 years with no success.


Sorry, this is long. It's just, I need to know if I'm ok and REALLY need to get back to work, but I need a diagnosis. Oh, I'm not pregnant, I keep getting asked and tested for that... If anyone has any ideas, or advice it would be great.


Thanks for reading.
Reply
 
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LuV4Autumn responded:
I'm so sorry to hear you've been dealing with so much and still don't have a diagnosis. I understand you've had a lot of blood work done, but has anyone tested you for Lyme's Disease?

I'm not sure if I will receive notifications of your response, but I will try to check back occasionally to check and see if you have had a Lyme's test. Sending prayers your way.
 
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charmattack80 replied to LuV4Autumn's response:
I haven't been tested for that, I can ask at my appointment on Friday. I will definitely bring it up, I am not ruling anything out until I have proof.

Thank so much for the suggestion and prayers!
 
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shadowsmom42 responded:
Unfortunately, thyroid testing (TSH) almost always comes back 'negative' meaning your thyroid is ok. Sometimes it can come back borderline and doctors STILL won't try the person on thyroid medication.
First, see if any of your doctors will at least TRY you on thyroid medication. (Losing weight, though, is a sign of over-active thyroid, and fatigue is a sign of UNDER-active thyroid so that would be kind of hard to figure out just which one to try you on....).
Next, I agree with LuV4Autumn...see if any doctor has ever tested you for Lyme Disease. This is yet another test, though, that can come back either normal or borderline and yet the person can still have it.
These are just suggestions, of course. I've been around the medical field for many years but I am not a doctor. With that said, I've been wracking my brain trying to help you out...to give you other suggestions with the symptoms you gave (not to mention ALL of the tests you've already had, my goodness...and they still can't find anything!) but I just can not think of anything else. I sure do feel for you and I hope that you will one day get the answers you so desperately need and deserve. Nobody should have to go through all of that and still not have any answers......but I know what that's like, LOL.
Here's wishing you the best, Lindsey!!! Good Luck!!!!
 
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deanne65 responded:
Do you have any amalgam fillings in your mouth, the silvery kind? You might look into heavy metal poisoning, as one symptom of heavy metal poisoning (especially lead and mercury toxicities) is fatigue. I would suggest a properly administered hair test through Doctor's diagnostics. Do not mess with a provocation test!
 
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charmattack80 replied to deanne65's response:
I do. I would have never thought about that, I'll put it in my notes for the Dr.

Thanks!
 
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charmattack80 replied to shadowsmom42's response:
I am on Synthroid, I have been since I was a teenager. It was testing fine, but the endocrinologist actually increased the dose to see if it helps the fatigue. My physician was confused but, since it was a specialist, she let it go. I don't feel a difference, but I'm so stressed out and not sleeping, I wouldn't know.

I have the idea in the back of my mind, that the Drs have all said it wasn't, but a week or so before it started getting REALLY bad, I had a mild case of bronchitis and was on a strong antibiotic and 5 days of prednisone. It wasn't a fun five days, those two meds together were worse than being sick in the first place, they worked like magic on my bronchitis though. I thought it could have contributed to it being adrenal but apparently not.

I haven't gotten the OK to return to work, so I'm stuck at home and both my company and Cigna won't approve my short term disability until there is a diagnosis and a return to work date. I haven't been paid since March 1st and there's no paycheck in sight. I lose my insurance at the end of the month and I cant afford COBRA. I'm considering looking for work elsewhere, I hate to because I've put in a good five years where I am and don't want to go. Not to mention, the job market.

I want to get a chronic fatigue diagnosis at least, just so there is something to try and approve the claim. I can't afford any more tests or new Drs. I definitely feel like I hit a wall this week.
 
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Olivia_WebMD_Staff responded:
Hi and welcome, charmattack80.

It looks like you've gotten some great feedback from others here, and I don't really have anything to add. There are many, many health issues that can be linked to fatigue. While you're waiting to see your doc, you may want to just search around our site using fatigue as a keyword.

I hope you get the right diagnosis soon so you can get started healing.

Take care,
Olivia


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