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Ok - I give up. Need somebody's help.
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yardguy posted:
Ok - it has changed on here. I posted a question and had responses, which I had been answering. Now - how do I find my post.
I use to go to "Drug and Supp" then I clicked "Dissuss w/ others" then I typed in my 3 words in the "search" box. I did the exact same thing today and it tells me "no matches". I was last on here 2 months ago? - I now some time has past but I would like to get there as I need to get some email addresses.
Thanks.
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Olivia_WebMD_Staff responded:
Hey there, yardguy!

Were you previously posting in the Drug Reviews area? Give me the bookmark you have for where you used to access the site. We'll do our best to help you find your way to where you want to be.

Take care,
Olivia
 
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6kt5az replied to Olivia_WebMD_Staff's response:
Why didn't you just keep things the way they were? They were fine. "Do your best?" What is THAT? There is do or do not. And apparently you do not.
 
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yardguy replied to Olivia_WebMD_Staff's response:
Oliva - After I clicked on "Talk w/ others....." , just like I did to get here, I typed in the 'SEARCH" box - "ms and hiv". When I was taken to that page I looked to see if anyone else had asked anything like that and they did not. I then typed out basically who I was, what I had, and the reason I was asking for help on this is because I am doing a research to see if anyone in the US has done a study and/or a case study on ones who have both (like me). I received several answers and emailed them back and some had emailed me with sites to go to. Well, I guess I am not doing something correct because I can not fine it. I even went to "Hiv" and tried there - nope. So if you can fine all that it would be helpful. Plus I would like to give an update and where I am at the present w/ this as some have asked to keep them updated. (I know it has been around 6 weeks since then.)
Thakks so much.
 
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Olivia_WebMD_Staff replied to yardguy's response:
Hi again, yardguy.

It sounds like you were posting in our Drugs and Supplements area, and you can find that HERE .

You should be able to find the medications you were chatting about there and then click the reviews section to find your previous reviews/discussions.

I hope that helps.

Take care,
Olivia
 
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Olivia_WebMD_Staff replied to 6kt5az's response:
Hi 6kt5az!

I am sorry to hear that you dislike the new Exchange format.

The reason we didn't keep things the way they were is that we could no longer support the old boards. And, that platform also did not allow us to grow the way we want to grow.

We recognize that this new experience takes some getting used to, and we are still tweaking it and taking member feedback.

It would certainly help to know exactly what it is about the new forums that you do not like and why. That will help us make the appropriate tweaks as we move forward.

As for "do my best"...that is simply all I can do. I can't begin to know everything, and I can't begin to please everyone. None of us can.

Take care,
Olivia
 
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yardguy replied to Olivia_WebMD_Staff's response:
Hi again Olivia,

After reading your last post, I went back and read what I typed.
If you don't mind, can I go over what I did in the past. It was not under the "Drug" section.
This is what I did:
1. I clicked on "HEALTH A - Z"
2. I then went to "MULTIPLE SCLEROSIS"
3. I then went to the left side of screen and clicked on "TALK WITH OTHERS ABOUT MULTIPLE SCLEROSIS"
4. That is where I blogged about if anyone knew of studies on MS AND HIV anywhere.
Hope this helps. I am still looking where I can the replies. there were several and w/ emails. Again I believe it was about 3 months ago.
 
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susiemargaret responded:
hello, YG --

i think that the discussion you want is at the MS exchange -- http://forums.webmd.com/3/multiple-sclerosis-exchange/forum/2749/8?@673.D1BpaVo3aPB .

there is also an HIV exchange -- http://exchanges.webmd.com/hiv-and-aids-exchange . however, i did not find any Qs from you on it.

the way i found these was --

-- (1) hovering over "home and news" at the far left of the blue bar across the top of the page,
-- (2) clicking on "exchange health info, NEW," which is the fourth in the dropdown list, this took me to a general page for the "health exchanges,"
-- (3) going about halfway down that page,
-- (4) clicking on the letter that i thought began the name of the exchange i was looking for ["M" for "multiple sclerosis," "A" for "AIDS">;
-- (5) if i found an appropriate exchange ["multiple sclerosis">, clicking on it,
-- (5a) doing a "search" for your name ["yardguy">,
-- (5b) which brought me to your original post under "multiple sclerosis," the address of which i used in the first paragraph above, or
-- (6) if i didn't find an appropriate exchange,
-- (6a) doing a "search" for the exchange name i had tried to find ["AIDS">,
-- (6b) which brought up a list of exchanges related to AIDS, including both "HIV and AIDS exchange" and "HIV and STD testing," clicking on each,
-- (6c) doing a "search" for your name ["yardguy">, which brought me no hits,
-- (6d) so i used the address for the main page for the "HIV and AIDS exchange" in the second paragraph above.

if i hadn't found an exchange that seemed relevant, i would have --

-- (1) either chosen another keyword and done another "search," or
-- (2) clicked on "still can't find an exchange that is right for you? create your own."

at any rate, i hope that you will be able to find what you need and that you will keep us posted on how you are doing.

-- susie margaret
 
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yardguy replied to susiemargaret's response:
WOW - Susie - you did all that!! Thanks. I will keep trying. I am going to print your response and try all that. You would think when I type "ms and hiv" in that little box it would show me my past blogs but I think in their changing the format, the past blogs were lost - but I will def. let you know.

I will also keep you informed on here how it is going. So far I have emailed John H Univ and they emailed me back saying that they have not done any studies on anybody w/ both. They gave me some places to look and email - nope dead end. I emailed the NMSS and they told me to look at all the case studies on MS under their list of studies - nope - dead end. No studies on both of those. I can not remember right now why, but I had emailed the National Cancer Center. They emailed me with a long list of places to try, some of which I have tried already. One of the past blogs(one I can't find) someone told me to try San Francisco HIV/AIDS Center and check them out. Also a place in Vancouver - that is one of the web add. I need. Basically I am checking out any studies dealing w/ white blood cells in both MS and HIV. I am trying to keep my count down when it comes to MS because I do not want another attack. When it comes to HIV I am keeping my T-Cell count around 300 because I don't want my white blood cell count to go high. (my Infec Disease Doc is pissed) I am the only patient that both my Infec Disease Doctor and my Neurologist has ever seen that has both MS & HIV. I also have poly neuropothy in both feet and Carpul Tunnel in both wraist. I just can not believe that, so far, no one has studied ones w/ both these diseases and how medications effects both and how the white blood cells do in both these.

Thanks again Susie. (Hope I spelled everything correctly)
Eddie - Yardguy
 
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yardguy replied to susiemargaret's response:
Susie - thank you, thank you, thank you. Found them!!
Yes, after clicking here and there and reading articles along the way, I saw on the top of a page "MS Exchange" I clicked on it and it took me onto another page where I typed "ms and hiv" in that little box and yep there they all were.
Again thank you. (Oh - Debi gave me the wite for U of British Columbia) Will keep you informed.
Eddie - Yardguy.
 
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susiemargaret replied to yardguy's response:
hi, eddie --

yay!

-- susie margaret
 
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Olivia_WebMD_Staff replied to susiemargaret's response:
Susie,

You are amazing! Thank you so much for jumping in here and helping when I had to be away.

Yardguy, I am so glad you finally found your long-lost posts.

Take care,
Olivia
 
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susiemargaret replied to Olivia_WebMD_Staff's response:
hello, olivia --

wow! thanks!

i'm pretty OCD, so i hate loose ends and, apparently, am also constitutionally unable to not respond to people who can't figure out how to find where they want to be! i want people to go where they are the most likely to get lots of responses.

-- susie margaret


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