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    I really need direction
    An_252598 posted:
    I have a 25 y/o daughter who has had debilitating back pain since the age of 15. Background hx: She was born with hip dysplasia that wasn't diagnosed unitl she was over 1 yr old. She needed 3 surgeries to to correct the dislocations. At 3 they went in and took the screws out. On one side, the screw inadvertently broke and they were unable to remove. The MD said it shouldn't cuase her any problems.

    She was also born with Spina Bifida Occulta but we were told that this would not cause her any problems.

    Her pain is located mostly on the left side, in her buttock, low back an dupper thigh. The pain renders her incompaticated and unable to stand or sit. During this time there is nothing that will bring her relief.

    She is being treated at Kaiser, and has seen numerous doctors, none of which is able to give us a diagnosis. They have sent her to a pain specialist, and Orthopedic MD and a Psychiatrist. None of which can afind a cause for her pain.

    I feel hopeless watching her suffer so much and not being able to help her or determine the cause.

    I am hoping that someone here will have more info on Spina Bifid Occulta, or know if Hip Dysplasia that has been treated and corrected can cause this much pain later in life?

    How do we go about getting an opinion outside of the Kaiser HMO system? They are unwilling to give her a referral to an outside MD and we don't have the money to seek this on our own.

    If anyone can help me I would greatly appreciate it.

    Thank you so much.
    davedsel responded:
    Hello and welcome.

    I am sorry your daughter is in so much pain. I understand how hard it is to watch her and feel so helpless.

    Unfortunately, no doctor replies to these posts any longer. We are a support group comprised of lay people who have more experience with back pain than we would like.

    It would appear that your hands are tied as far as going outside your HMO. Others may post that have other insights as to how to go about getting funding for outside opinions.

    The best we can offer is our support, understanding, and some links to websites that have good information about spinal problems. Here are those links:

    WebMD Back Pain Center:

    Spine Universe:


    I pray you can get answers and relief for your daughter soon.
    Click on my username or avatar picture to read my story.


    trs1960 replied to davedsel's response:
    Debsbears responded:
    I am sorry to hear how much pain your daughter is in here's another thought -

    A friend of mine had what you are describing and after many years of pain he finally found out it was his nerves in his back that went through the buttocks down his leg. He had surgery to correct it.

    I am not saying that is what is going on because I/we can not diagnose anyone - it is just another option to look at.

    My prayers will go out to you and your daughter that the proper diagnosis will come so she can get soon relief.
    jessicawerth responded:
    it sounds like sciatica and or a pinched nerve. at least it is for me i am 23 have been battling degenerative disc disease spodlyosis crowding spine etc etc since 19. Well the major symptoms. recently my back locked up so bad i was rushed to the hospital. after i have had the same pain in my lower back down my buttcheek through my leg for going on two months now. it is debilating me. i cant do anything literally. if this is making it hard for her to lay on her side because of the nerve pain goes through her hip and makes it worse lay on a soft fluffy pillow it will help greatly. it did me i am going through pain management a neurosurgeon physical therapy at home a nurse at home. i hope this helps a little. and good luck.

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