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    nerve pain
    kathy34567 posted:
    neurotin/gabapentin works for the nerve pain in your legs and back, since i started taking it 7 years ago, the pain has stopped as long i keep taking this med.

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    lifesajourney responded:
    This is interesting. I didn't even know what that drug was for. My doctor has never suggested it. I am having a radiofrequency ablation on the 15th. I think that is a better option for me anyway but it just shows we are all different and need to be under a doctor's care to to help make the best decisions for us
    bj1208 replied to lifesajourney's response:
    I have been on gabapentin for 3 years now and it has made a big difference - as much as day/night -

    If I miss a dose I can really tell as my pains will start up and will take a good day to get back on track -

    usually pain management clinics will try all other treatment options first before requesting an EMG Nerve Conduction Test to determine if there is nerve damage - I had gone to 5 different pain clinics before going to one I'm at now and on my first day they did this test and determined I had nerve damage not only in my left leg but also my right one -

    I had the radiofrequency nerve ablation done 2 times - each time the treatment only lasted as long as the numbing agent lasted (about 45 minutes) then the pains came back worse than before - but we have had numerous members that have had this done and have had great results where it has lasted more than 3 months -

    I hope this works for you - keep us posted - take care - Joy
    nikkita22 responded:
    I am so very hopeful, started taking it about a week ago, and am already seeing a difference. I was so skeptical, and now am so very happy. Good medication!
    bj1208 replied to nikkita22's response:
    Hi Nikkita22 - welcome to the support group -

    the posts you are replying to are over 2 yrs old but we are glad you found us.

    I have been taking Gabapentin for about 4 yrs now. Just be sure that you are taking a low dose (usually 300mg a day) for a couple of weeks then slowly increased dose over a couple of months until a therapeutic dose is reached for you.

    Please keep us posted how you are dong~~
    ~~ Click on my name or picture and read my story ~~

    Take care ~~ God Bless ~~

    ~~ Joy ~~
    nikkita22 replied to bj1208's response:
    Yes, it is 300mg x 3 a day now. I am glad to hear that over the years it does not lose it effectiveness. Seems to me thats what the pain pills do. Anyway, I know now I wont have to increase the pain pills dosage with this new drug, and Im just happy about that. I see some light in this back pain dark world I have been in lately.
    trs1960 replied to nikkita22's response:
    I was taking around 2,000 mg a day as it quit working so we kept increasing the dose. I finally quit taking it until a few weeks ago and started right up on 900/day. It, along with another muscle relaxer do help a bit taking the edge off. I don't notice any side effects at all. Time will tell if it lasts.
    trs1960 replied to trs1960's response:
    Neurontin is actually an anti seizure medicine that is used for epelipsy. It also works well to minimize nerve pain. Another case of a drug with a great secondary usage.
    nikkita22 replied to trs1960's response:
    Hi all, Im up to 1800mgs a day, wow what a difference in my leg, and hand. Its 90% better, and so I am thrilled. It does make me very dizzy, tired though. Anyway Ill take the side effects anyday as opposed to the electric bolt of pain as I like to call it.
    Cant wait to get the epidural, I hear they are helpful as well. I am currently on a waiting list (missed the last due to having the flu). Does anyone have the symptom of infections with these meds? Im on percocet and neurontin (now I have a bladder infection I think). Thanks for all the responses, I have learned so much from this web site. (Dont have to bug the Dr. with 18 million questions).
    bj1208 responded:
    Hi Kathy34567 - welcome to the support group -

    I also take neurontin/gabapentin for the nerve damage in my legs (both of them) and have been on it for about 4-5 yrs now. And yes it does take care of the nerve pains in my legs (don't really notice in my back as i have severe chronic pains).

    I noted you said as long as you take the med the pain stops - yes it does, but boy if I miss a dose I start noticing pains in my legs and realize I missed my dose. So it does really help.

    I've also spoke to members on this support group that take Lyrica and have experienced the same results.

    I wanted to welcome you to the support group and to say you can post/response anytime you want. We appreciate others helping by sharing their stories.Take care~~
    ~~ Click on my name or picture and read my story ~~

    Take care ~~ God Bless ~~

    ~~ Joy ~~
    notthesameshannon replied to bj1208's response:
    OMG I thought I was the only one with these severe nerve shooting pains in my leg and foot... Where it's numb. Gabapentin does help! Especially when combined with a pain drug, I take Hydromorphone.

    I had no idea these pains were a possibility and were going to be so bad, then to be told at neurosurgeon that they will never go away???

    I am happy that we can get some sense of support and I don't feel so alone in this awful life with pain.

    Thanks for letting me write!
    notthesameshannon responded:
    what are these pains called, I have these episodes and they keep lasting longer and worse! It's insane!
    The shooting, searing pains are random but then keep happening in the spot when it flares up for hours!

    I just started Gabapentin seems to work, BUT I had no idea this could happen, no idea what it was and well.........

    bj1208 replied to notthesameshannon's response:
    Hi Shannon -

    Sorry I didn't see your other post -

    Sometimes the nerve pains could be from an underlying problem - meaning a disc(s) could be bulging and pressing on the nerve roots causing the pains.

    It's best to start out seeing a spine specialist - Orthopedic or Neurosurgeon Spine Specialist. They will examine you and order tests (X-rays, MRI's or CT Scans etc) and give you an accurate diagnosis.

    Seeing a good pain management specialist is good to as they do go deeper into pain management and treat from the source of the pain instead of the pains itself. I see a PHYSIATRIST Pain Specialist

    In regards to Gabapentin - what milligram are you taking? How did you start out on it?

    This medication is one that needs to be started out slowly - usually 300 mg a day for a week or two to get used to the side effects - which do go away after about 2 weeks. Then the dose is increased slowly until a therapeutic dose is reached - usually around 2400mg a day.

    I take this and am at the limit - 3600mg daily (1800 twice a day).This is the best therapeutic dosing to be reached as I do have permanent nerve damage in both legs. It does help with the nerve pains but there is nothing that can help with the numbness. Since my last back surgery (12/4) I have been having more problems as it looks like my L3-4 disc has bulged and is pressing on a different nerve root.

    Oh it might help you to understand the nerve roots and which discs affect the different parts of the legs.

    This shows the different areas (leg version) of where each disc affects the different parts of the leg.

    Hopefully this will help you understand what's going on. Let me know if you have other questions etc. Take care~~
    ~~ Click on my name or picture and read my story ~~
    ~~ Joy ~~

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