Brain Cancer

Hi, You are great.....I wish I clould tell you what to do... It may be worth living longer but not in agony.. I have locusts in my head and don't see very well. You and I know that the time will come when we have to say either let me die in peace or let me struggle in misery... I refuse to be on life support for too long , I saw that too much with my mom and a friend of mine suffered dearly-- I can't do it--- let me live with what I have- of course I've some intentions of trying to enjoy what is left but I don't plan on going anywhere right now...You'd be a hero if all this brain stuff worked...if you can enjoy what you have ,, you know I think once you're in the hospital it's getting out that's the trick... I'm glad they have alternatives for you.... My lungs are hurting this am...... but I'm glad I can still breathe. laura

I understand the thoughts you are going through. Three years ago I was diagnose with an OLI. I had surgey and six weeks of radiation. The greatest day of my life was when I read the MRI report stating that there was no tumor. I had felt the world was lifted off my shoulders. It was a second chance in life. However I have heard from the three doctors that it will return most likely. I will have to go through another round of radiation treatment. Only thing that would make that change is if there is a cure. When I think about it. I think I do not want to relive that experience again. It was hard laying in bed, thinking that I am going to die. Today everybody tells me I have nothing to worry about. I say, I do. The fear that one day this burden is going to come back. That alone is enough stress that has wiegh a lifetime of worries on me. As to what you should do? I know, I am a lover of life and this world. I would do anything to give me one more extra day of life.
To be around my wife and kids is the most important in my life. So i say like Jimmy V. said never never stop fighting. Everyday we live makes us that much stronger. So enjoy the gift you recieve (life)

I am so delighted to talk to another cancer patient, thank you.They tell me I'm terminal...I didn't wake up dead this morning, yehaw....There's a 30-40% chance of brain cancer coming back so they say but my sister in laws dad had NO recurrence for 20 years, yes 20 years.. Everyones dies and the day I die it'll make me right lol thank God it's only once... My name is Laura, I'm 49. I went into the hospital for a heart procedure and they couldn't fix my very diseased heart, i was the othetr 5% they said, instead they told me I had lung cancer which went into my lymph nodes then within a week I was having seizures. My whole brain -- 3 large tumors and 12 small and they said they couldn't tell how many more because the brain scan only picks up 1 cm or more tumors..I was seeing so many Dr.s and no one could tell me why I was shaking , why I had a bobble head at the time why I kept loosing my balance, pathetic..until the seizures they got smart and I got that brain MRI. How drastic has my life changed..They gave me a few months give or take a couple haha.. I'll never forget that week , I was consoling my Dr.s I was and listeneing to my family saying it'll be alright... I'm now getting ready to get out of all this snow on Jan first,, my sisters and I driving to Florida for some fun as much as I can do , as weak as the chemo makes me.. I had 3 weeks of radiation everyday , the whole brain,every 3 weeks, it got really sickening as I could smell what I thought was my brain getting zapped/burned.. I am driving short distances now but only on good days...I will not be driving to Fl, but I will be playing my ninetendo DS on the way lol. Do you have any brain damage or do you repeat yourself a lot or has anything changed like that? It has with me,it's okay my family understands but it would be nice to write to someone else who has it...I'm still on my own for now. Merry Christmas and Happy New Year ttyl Laura