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    Hoping to hear Good News Stories - Stage 3 Brain Cancer - loss of cognitive abilities
    avatar
    askjustice posted:
    Hello folks I am writing here to hopefully hear some positive news. My friend is 52 yrs old. Just about 3 weeks ago I was speaking with her on the phone and her answers to questions were "off". I mentioned it to a friend but while they didn't really make sense, I did not immediately realize that something was seriously wrong.

    I learned about a week and a half ago that her husband thought she had a stroke - she sent a rambling email and in conversation she started to not make sense. The discovered a Brain Tumor.

    She had a biopsy about a wk and a half ago. (Initially they said that they were only going to keep her a couple days, but she was in the hospital almost 2 wks) A few days ago we learned it was Cancer/maligant. But her husband was too shaken up and did not get the type in writing - he said it was Type 3 - which we assume was Grade 3. While the doctor said it was "Ugly" we don't know what variety it is.
    They said it was inoperable and planning Radiation to start this week - likely to be followed by Chemo.

    She was home less than 1 day, but was being combative and her husband feared he falling and hurting her head.

    So I finally saw her and I am so shaken. She really does seem like someone who has had a stroke. Very, Very few words make any sense - although she does seem to be trying to converse - even if struggling to get the right words (but almost never succeeding) I am so out of my league. I mean I have no idea whether I should pretend that I am following what she is saying. And how do you follow up to a sentence that is incomprehensible - Do I nod and act like I understand or say that I am sorry but honey I cannot understand?

    I know of several cases where people have survived various brain tumors. But one was not cancerous (and he has survived almost 50 years since) another survived a grad 2 operable "pure" malignant tumor. I just heard of another person who survived and came all the way back from a stage 3 - with radiation (but his problems/symptoms were not "cognitive" (words speech, etc) but he was passing out.

    I know we need to know what KIND of cancer it is (I believe but am not certain, that is has not metastasized )

    Since i am out of my league - I wonder do others have examples where people have recovered from similar severe issues with cognitive /speech issues?
     
    avatar
    sxbrown responded:
    Greetings,
    I was diagnosed with an Anaplastic Oligodendroglioma (stage 3) in July 2006. Here I am six plus years later and no recurrence.
    Other types of brain tumors are more aggressive and are more difficult to treat successfully. I had surgery,3 months of radiation with low dose chemo, six months of higher dose chemo (Temodar). I had very effective anti-nausea drugs which I'm sure enabled the Temodar to have it's full effect since I wasn't vomiting every dose up. Depending on the tumor type, outcome may be better or worse than expected.
    I do know a woman who has survived 17 years with any inoperable brain tumor - so don't give up hope.


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