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    Only 3 seizures, now pregnant, & thoughts on driving
    An_264625 posted:
    Hey, so I'm trying to see what people's thoughts are of my situation. I'm a 31 year old female who had previously never had a seizure or even passed out for that matter. Last May I had begun taking amoxicillin for a sinus infection when I started getting these strange deja vu dizzy spells where I would get very nauseous; they would last only a few seconds then pass. I had also been depressed, stressed out, & dealing with jaw pain that we think may have been a tooth infection. On July 25th, I had 4 of these spells, the 4th of which ended up in a full-blown, convulsive, grand mal type seizure. I hadn't drank much water that day and was on my menstrual cycle which had been heavy for 3 days. I had another seizure out of sleep about a month later while on Levaquin for the same sinus and/or jaw/tooth issue. We decided to not take anti-seizure meds at this time, since we thought that I wouldn't have another seizure once my health was back in order. For a few months I had no seizure activity or dizzy spells, but I had another one out of the blue this February while taking an afternoon nap. The jaw pain had come back about a week before, but I have now gotten a root canal and I only get some jaw pain with a migraine or headache. At the end of February, I went ahead and started taking 500mg keppra 2x day. Fast forward to now, I'm 4 1/2 months pregnant and have been seizure free over 7 months and trying to get my license back (state law is 6 months seizure-free). But I'm seeing a new doctor who now states that he thinks it would be too much of a risk for me to drive while pregnant especially after a blood test indicates that my medication levels aren't in therapeutic levels at the lowest point of the day. He's not a neurologist, but an internal medicine doctor who has treated an epileptic friend. So...I guess I'd appreciate any thoughts on whether I should go to a different doctor, whether it's really epilepsy, and thoughts on driving and the pregnancy. Thanks for listening.
    dancer86442 responded:
    Hi An_

    First, Yes, you should see specialists! OB/GYN & Neurologist. You & them Need to be a Team Thru out the rest of your PG. Keeping each other updated. The fact that you have been seizure free is good news. Congratulations. I was seizure free during my PG too. I was 37. BTW: Your age &/or Epilepsy history Does make you a High-Risk PG Patient. But, a Lot of women with EP do have safe births. Healthy children.

    I have heard of Internalists dispensing pills. But, only if recommended by a Neuro. An Internalist does not know as much about Epilepsy or epilepsy meds. Although they do know to run routine blood tests. I Know! I got an Internalist & he don't believe me about my side effects. Blames everything on Age & Lifestyle I think you lucked out, being placed on Keppra. That could be controlling the seizures. But, I noticed a pattern. Your seizures were occurring around your mthly. Check out our Resources. Find Info about Catamenial Seizures. Seizures induced by hormonal changes.

    Whether it's really Epilepsy? 2 seizures=Epilepsy. Over 65% of seizure disorders are 'cause unknown'. Genetics, what we eat/drink, Stress & many other aspects to causes. Takes a while to figure it out. You can assist your Drs by keeping a Daily Journal. Even though you Are seizure free. Seizures, as I have learned, do Not discriminate as to when or where. or how long in between.

    You wanted my thoughts on driving! Don't! It was proven in a Research study from the UK Yrs ago, that 1 yr seizure free was a Safer period of time. I Agree! Especially if you are having Lows in Therapeutic Levels. Your system needs to maintain a steady Therapeutic Level or else you Are at Risk of another seizure. This would be a Question for you to ask your Neuro, if/when you get one....Do I need to Raise my meds? Would it be safe for the baby if I do so? This is Important! A Seizure Could induce Labor or harm your child.

    Will you keep us posted? Ot at least reply to let me know you listened to me. I am always here if you have more questions or if you need to vent. You are not Alone. You can read my Journey by cliking on my Picture or ID. Hugs

    Love Candi
    International Awareness Day: Second Monday of Feb. March 26: Purple Day, November: Epilepsy Awareness Month. Wear Purple to show Support. Advocate
    dancer86442 replied to dancer86442's response:
    BTW: If interested, you can use the 'Search This Community' tool, top rite side of this page. Pregnancy, Keppra & Catamenial seizure Info/discussions. You may get some Helpful Tips. Also, Check our Helpful Tips for more Info about what to include in your Journal. There are apps on some cell phones that make it easy. OR you can do as my Hubby suggested. A small microphone that transmits to a memory?? stick. That you can download & print out?? Personally, I prefer hand written. Hugs again! Know I care. Love Candi
    International Awareness Day: Second Monday of Feb. March 26: Purple Day, November: Epilepsy Awareness Month. Wear Purple to show Support. Advocate
    dancer86442 responded: Recent Discovery. Heads Up! Hugs
    International Awareness Day: Second Monday of Feb. March 26: Purple Day, November: Epilepsy Awareness Month. Wear Purple to show Support. Advocate
    An_264625 replied to dancer86442's response:
    Hi Candi, Thanks for your reply. I guess I'm still in denial of having an actual seizure disorder and hoping I never have another seizure again. You probably know how difficult it is to not be able to drive after driving for over 16 years. We also live about 20 miles out of town, I work, and have 3 young kiddos, so I would really love to have my license back as it causes it's own set of stress (getting rides to/from town for work, school, grocery shopping). I do understand the risks of driving, but I was kinda thinking that since my med levels get so low & I still haven't had any dizzy spells or seizures, that it was a good sign that I may not have another one. I definitely plan on seeing a neurologist soon, but where I live there are only 3 in one office and we didn't have a good experience with them. I may have to go about 300 miles out of town to find one. I am seeing my Ob monthly and will be talking to a family member's neurologist about whether I should increase the meds. Well, I thank you again for your response & all the info, I will def. check out the discussions and link you shared. Have a good day!
    dancer86442 replied to An_264625's response:
    Hi An,

    Thank You for your Reply. Yes, denial is a phase most of us go thru, no matter what the diagnosis/ailment.

    I do hope you see a neuro soon. So, that you can get answers about your meds. Plus, keep in mind a neuro has to sign papers stating you are 'fit to drive' which is then submitted by you to the DMV office. Yes, I know how difficult Not Driving can be. But, I am Wise enough to know the Danger I place Myself & others' in, by doing so. So, Good Luck! BTW: Not sure if this available in your area, but, check out Uber (a place to find 'share rides') or check out/place an ad on Craig's List for 'share rides'.

    I do hope you will keep us posted. And Keep Educating yourself about Epilepsy & all it's aspects. It may not seem important, now. But, it could be very useful to know in the future. And may just get you out of 'denial' mode. Hugs

    Love Candi
    International Awareness Day: Second Monday of Feb. March 26: Purple Day, November: Epilepsy Awareness Month. Wear Purple to show Support. Advocate

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