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Welcome to Epland. Let me see if I get this rite.

First, You have had more then 2 "episodes" (includes partials & auras). You have Epilepsy. You don't need a DR to tell you that. Tests can Most times detect the problem or source. But, EEG's won't pick up activity if it is too deep in the brain or no activity at the time of the test.
What can you do??? 1. Start doing some "homework". You are your own BEST advocate & you need to be prepared to face your DRs w/ what YOU have learned &&&&& what you have experienced. Have you started an EP journal? Start off w/ the history you have given us. Try to remember what others witnessed or ask them again. When you sense an aura, (aura's are szs) take note of it & any other "odd" behavior/feelings/episodes. Keep up w/ your journal on a daily basis. Include meals/bevs, OVC medications/prescriptions, activities. ie: TV, comp, awake/asleep.


Questions for your DR!
www.nomoreseizures.com/
Are you aware that EP can cause Depression? Anxiety can TRIGGER szs.



You are a "normal" young lady. Just use "common sense".


What other tests would you like the DR to run?




Keep talking w/ us. We will be here for you. You are not alone.

God Bless
Love Candi & family


Thank You for replying. I do hope you will keep us posted. Your "auras" are seizures. You really do need to get them under control, too. Ask your Neuro about a small increase in your meds. IF it has been more then 6 wks since you started your Trileptal.

HUGS!
God Bless
Love Candi & family







Lots of Love, Molly




Patrick

Your story sounds almost exactly like my history with seizure disorder. I began having partial seizures with an aura of odor at puberty. I saw my family doctor who treated me for anxiety - I am convinced he gave me sugar pills. The seizures stopped until my senior year in high school. My EEG was normal and they treated me again for anxiety. The medication really sedated me but didn't help the seizures at all. I saw several doctors at that time, none of whom seemed able or willing to diagnose me with epilepsy. (At that time, a diagnosis of epilepsy was a stigma.) Finally, I saw a doctor at Johns Hopkins Hospital who quickly diagnosed me as having temporal lobe epilepsy. He told me that it is not uncommon for people with partial seizures to have normal EEG's. I was treated with Dilantin and Phenobarbital. They were very sedating but controlled my seizures until I became pregnant.
It is very important to find a doctor who will treat you for your seizure disorder. If you continue to have seizures, they may become more frequent and more severe. Sleep is a particularly difficult time because it lowers your seizure threshold. If your sleep is repeatedly interrupted by seizures, you can become sleep deprived, which only makes the situation worse. At one point, I was having seizures every 2-3 hours every night. I was exhausted and sedated by seizure medication.
The good news is that I have been seizure free for many years now and I just take Dilantin. Most of the time I don't even think about it.
You might try to find a teaching hospital - where doctors are trained - in your area to see if they have a neurological diagnostic clinic. They tend to see more patients and are better at diagnosing patients. Try the big universities in your area to see if they have medical schools.
Good luck. Having seizure disorder is not the worst thing that can happen to a person, but it is something that needs to be controlled.
Shannon

My seizures started when I was a baby, so I've had them for almost 45 years now. Originally they started out during the daytime, but I only had 4 in 18 years, then I went toxic, changed meds, had a child, things started to go out of control, and then in between 2 more pregnancies, my seizures morphed into strictly nighttime seizures. They were still a bit out of control, but not nearly as much. Now, things are better.
EEGs are literally a "snapshot" in time...just because it's clear at that point in time means nothing. I've had clear EEGs for over 40 years, until about 3 years ago. And trust me, I HAVE E. If you could possibly get hooked up for a video EEG that lasts at least 48 to 72 hours, or even 96 hours, that would be excellent, and the doctors would be more likely to catch something. I just finished a 96 hour portable EEG 2 days ago (YIPPEE


You are NOT under control if you are still having auras because auras ARE seizures. Please ask your doctor to also do an MRI (to look for physical causes in your brain) and bloodwork to determine if there are any hormonal imbalances that may be causing your problem.
I posted the other day with some very specific things that I post on another forum (as a moderator there). You might want to check it out.
I do want to ask something: Have you set up a nightly routine before you go to bed to RELAX? I mean like turning off the TV, turning on some soft music, meditating/writing in journal, and then lying down to go to sleep? Or something along that line?
Something else to consider: I have no melatonin in my body because of cyst in my pineal gland, which severely affects my ability to sleep, which in turn can cause seizures. I have to take melatonin everyday, as well as a few other things to help out (I have four types of E). This would be something that would be found on the MRI......
Good luck, and take care.
Meetz



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