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    confused need help
    semed posted:
    My dr just ran several blood test to check for RA, lupus, pretty much anything that could be causing a rise in arthritis/fibro pain. They all came back normal. My pain just doesn't want to go away. I'm so tired of hurting. Does anyone have any ideas that could help lessen pain or what may be the problem?

    I am depressed (working on this,) I have RA in neck back hips and hands, and I have fibro, and overweight with diabetes type 2. I hurt everywhere above my knees.

    I'm only 53 and I feel 153. I'm at a loss.
    TurtleRunnerNC responded:
    What medicines are you taking? Has he tried different meds to help the Fibro? Something to help with sleep?

    As hard as it is, movement helps a lot. Start slow. Short walks and gradually increase. May seem impossible now but trust me.

    Please share what you have already tried so we can try to help.
    dollbug responded:
    Hello and welcome. MiMi in NC. A good start would be to keep a journal of what is going on with you each day....include what you eat and drink and your activity as well. Keep up with your pain level as well. Eventually you just might be able to tell what might be making your pain worse.

    Drinking lots of *water* every day might also help your pain. You do not mention what you have tried to help with your pain. What have you tried and has any one thing helped more than something else?

    Getting enough sleep is also important for us FMers. If you are having issues with this perhaps you should try taking a hot shower at night using lavender bath salts right before your bedtime to help your body to relax so that you can sleep better. Stopain Spray is good stuff can get it at Walmart for just under $10. Use it on places which cause the most pain. Have you tried a heating pad? Moist heat is really good for me to use.

    I am sure that you will find something that will work for you. It does take time and effort.

    Have you gotten your Vitamin D level checked? This is important to a lot of people. Low Vitamin D can cause additional pain for some of us and it can also affect other illnesses as well. Speak to your doctor about this.

    Hang in here and learn all you can about what others have found that has made a difference for them. Check out the info under *tips* and *resources* here and be sure and review the *member toolbox*...which has some good *tools* that perhaps you can try.

    Know that we do understand what you are going through. Things will get better for you. You just have to find what will work to help you cope better.

    Take care.


    semed replied to dollbug's response:
    thank you for your words. I have been on various antidepressants. One was helping alot. It was nortriptyline. I developed heartburn so bad I thought someone was trying to rip my chest out. Dr and I tried a couple different meds for it but it wouldnt go away. Had to stop. It hurt more than current pain. I'm on cymbalta right now trying to get approval from insurance to up dose. They're taking their time. Taking norco for arthritis pain in neck, low back, and hips. It doesn't come close for fibro. I'm seeing pain management dr today for initial visit. I do try to move around but I'm one that curls into ball when in pain. Can't sit in tub knees won't let me get out. Have chair so can take relaxing shower seems to help. Heating pad relaxes me a little-muscle relaxer is a little help. Can't take NSAIDs due to stomach problems (even tylenol anf ibuprophen cause problems.) My body seems resistant to a lot of things. Don't want narcotics, but it seems that's the only way I can go. We'll see what new dr says today. I pray this helps. I have 4 grandkids to watch after school and I hate barking or shying away from their hugs. They mean a lot to me and I don't want them feeling guilty for hurting me. I feel guilty for barking at them. It isn't fair so I try not to say anything when it hurts. I guess I'm trying too hard to deal and fix it at same time. Relieving stress is difficult. This is my pity party, and I'm trying not to wallow. I'm just at a loss in coping right now.
    An_249675 replied to semed's response:
    Everyone feels at a loss in coping once in a while, even those without so many health issues. Try not to be so hard on yourself. This all started for me when I was 53. (3 yrs. ago) I tried to carry on, went back to school for a year to study something that was less physically demanding than what I was doing. I got top marks in my class and by then I was completely exhausted, physically and emotionally burned out and unable to even look for a job because the pain was so bad.
    I am still very angry. Anger is not unusual, neither is depression and anxiety. It is difficult not being able to do all the things you used to do.
    I am very intolerant to drugs and a lot of foods, so I don't have anything to deal with the pain. Narcotics did not help me and in some cases increased my pain. This is a fairly common reaction for those with fibro. I have taken morphine and it didn't ease my pain! I also have insomnia so I take a sleeping pill for that and it's the only relief I have but more importantly, you must really look at your diet. Sugar is highly inflammatory and gluten, dairy and certain fruits and veg. can also be a source of inflammation. A Curcumin supplement is available which is a natural anti-inflammatory. Vit. D and B12 and Omega 3's are all indicated as well. If you are able to do so, see a naturopathic dr. and try to walk at least 30 mins per day. This is not easy but is always recommended when chronic pain is involved.
    This a support group for people suffering with fibro. I don't see why we should have to feel guilty about complaining and voicing our concerns here on this forum. I don't tell anyone else about my issues and I think we should feel comfortable doing so here. Good luck with everything.
    bette_kaffitz responded:

    Yes, it is hard feeling this bad all the time. I assume you are on a diet regimen to control your type 2 diabetes. (My hubby will not stick to a diet. His diabetes take 3 different meds. His sister enrolled in Weight Watchers the week she was diagnosed. She is about 15 lbs. lighter and needs no meds. Diet is the key.)

    There are treatments that can help with your RA. Work with your doctor to find some that can prevent further damage and help curb that pain. One thing that really helps with this is exercise in a warm water pool. Many hospitals and physical therapy/rehab facilities have them. Because your body is supported by the water, you are not putting a strain on your joints. And no, you do not have to know how to swim.

    Your fibro may improve with your RA treatments. Hooray! But you and your doctor will have to play around with your meds until you find something that does help. That something is different for all of us. Confusing to us and the docs.

    Just remember that every day is a day closer to less pain.

    missist replied to bette_kaffitz's response:
    Hi.. just chiming in--I take nortryptiline and celebrex and gabapentin-- it seems pretty good all together for pain relief. I'm not pain free but I'm much better with it.

    Still haven't got a ton of energy and still get knocked down if I over do. but otherwise I'm not too bad.


    Just wanted to say that--it works. stops heartburn in its tracks--and its good for you.

    Saved my life, I can take celebrex--which is my last ditch nsaid. thanks to apples.

    If you are going to take an antidepressant--try to get one that is older. I'm just so not keen on new drugs that are spendy and may not be vettd well enough. I take them when I don't have any other choices. My insurance is picky about paying for new things so I get to pay out of pocket for advair and celebrex and that is painful.

    hope this helps a little. Mary
    semed responded:
    Got all tests back. No inflammatory arthritis, thank God. Saw pain specialist 9/4 and his diagnosis is that I probably have myofascial component problem. Looked this up to get better idea and what I read described exactly what I'm going through. It came to mind that it is fibro on steroids. It's different than fibro, but at same time its more. He started me back on gabapentin at 300-600 mg at night. Today I feel like a big bruise. It isn't helping with OA but the ache is a little less pronounced. Again, thank God. I don't know what to do about OA pain (acute break through pain,) but that is a matter of time and exercise. I've lost 20-23 lbs in last couple months after gaining 65 last year on antidepressants. The loss is a blessing. I'm still barking at grandkids cuz they aren't listening, yet I'm don't feel so anxious since overall pain level has been explained a little more and dropped a little. The fear of new disease was weighing heavy on me. Glad that stressor has been relieved. I'm feeling better finally!!
    teripurcell replied to semed's response:
    You're getting great advice from people on this board. Have you tried Savella or Lyrica? Both can provide excellent results for people with FM and are non-narcotic. The Savella works really well for me, and I have similar problems with NSAIDs. If sleep is a big issue, you might consider using narcotics at bedtime only.
    Initially I was diagnosed with RA, but it turns out that my joint pain was due in large part to a gluten allergy. This is common with FM, so the diet log is a good idea. Other common culprits include dairy and soy. If activity hurts too much, start with some gentle stretches. Then work in very small amounts of activity as your pain allows.
    meg_k replied to teripurcell's response:
    I have myofascial pain, too. I think a lot of us do.

    The top things that have helped me with pain:
    * Purchasing a home massager you can attach to a chair, which I use regularly. (Not a full LaZBoy but just the mobile kind --about $100 on sale and worth every penny.)
    * Cymbalta
    * Stretching
    * Warm baths or showers, but especially the hot tub type.
    * Vodka (just kidding)!
    * Might want to try an "oily" dietary supplement like Fish Oil (I forget what the other one is called -- condrointin?). One of my friends who's an osteopathic physician says that myofascial pain can be helped by these type of supplements that essentially "lubricate" between the fascia and help avoid the layers getting stuck and causing trigger point pain. I do think it helps.

    Good luck. We are all rooting for you!

    Meg K from MN

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