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    newly diagnosed
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    shellie2 posted:
    Hello. Finally after 10 drs, 20 years and numerous tests I was diagnosed by my rheumatologist today with fibro. I'm overwhelmed, happy and scared. I've worked 40 years and had to quit work in December and some days on a cane and terrible pain. Now comes the task of getting it under control again so maybe I can get my life back! I would appreciate any suggestions or helpful hints of what helps! Thanks for your support its very lonely being sick??
     
    avatar
    katmandulou responded:
    Hi shellie2 and Welcome!

    I know your diagnosis was hard to take, and you have a lot of questions. And you've waited a long time for it! Here's some info that might help.

    The word is scary, and the fact that no two people have the same symptoms make is scarier. I actually had a friend's wife (she's a doc) say, "I don't believe in FM," like it's the tooth fairy!


    There are lots of meds that are available and OKd for FM treatment, so don't give up yet. Sometimes it takes a few tries. You should develop a good relationship with your doc, keep a pain journal, and share it with him/her. It will give her a good idea what you're going through, and if there were any underlying stresses.


    In addition to the great tips and resources on the right, I have this one: http://www.butyoudontlooksick.com It's a great read, and look at The Spoon Theory. It's a good way to let people know exactly how you feel. Some days we get fewer spoons.


    We'll talk again, I'm sure. I wish you the best day you can possibly have,
    Lou


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