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    Problems after TKR
    garsgirl78 posted:
    I had a TKR in August 2008 at the age of 48. Surgery went well and I had little pain. When I went home I used a cpm machine and went to physical thereapy 3 times a week for about 8 weeks. I had a manipulation in November of 2008, the knee would not straighten very well. When they did the manipulation my rom was at 110 degrees. For the past 8 months I have been going through pain behind the knee and stiffness. The rom has gone from 110 to barely 90 but I do my pt every day. The pain behind my knee is so bad that I am up most nights with it. If I am lucky I can get 2 hours of sleep a night. I cannot be on my feet for more then half an hour and cannot walk more then a block before I start limping from the pain. The doctor does not know what this is from. They checked my blood for infection and that was ok but they have no explanation for what is going on. They are now talking about doing a possible revision. I do not want to go through all of this again when they cannot guarantee that it will get better. Has anyone else gone through this? I am at wits end, I want to enjoy my life and not be in constant pain. Any help would be greatly appreciated as I have to wait another 3 months before the doctor will see me again.
    kayito1961 responded:
    I got the same I start feeling pain on inside part of my knee on inside part of my leg.
    pcmack responded:
    Could the components be loosening? Have you considered a second opinion?
    comforted responded:
    I had a TKR in '04 and 2 yrs. ago I started having severe pain too. A sleep study accessed that I wake up over 25 times during the night because of chronic pain. I understand what you are going through but other than pain medication, meditation and prayer, the only alternative for you may be the "possible revision" procedure. If you have RA, remember that it is a symmetrical disease and a flare up could be the reason you are having so much pain in that area behind the knee and causing you stiffness. Ask your doctor to check your sonovial fluid and other RA blood tests. Maybe a change or boost in your meds will give you some comfort. Please keep me posted!
    mathman51 responded:
    wow where have I heard that story before haha! I just read this to my wife and she thought I wrote this comment. I totally feel for you and I too have gone through exactly what you have been experiencing. After my arthroscopy, the best they surgeon could get (ro) was 90 degrees. I have since digressed to under 65 degrees. I have opted for the revision which is quite extensive . I am 42 years old and I want to feel my age not the 110 I feel. I am sick of pain killers and the troubles I have placed on my family. I will keep you informed of my progress
    LillyC2 responded:
    First of all, if you're having this much pain and problems & your doctor won't see you for 3 months, it might be time to find another doctor. Could it be scar tissue that could be causing you so many problems? I had my left TKR on 9/11/09. I had a couple complications (blood clots & transfusions) which kept me in bed too much. 3 weeks after my surgery I had a manipulation since my range of motion was so bad still. Before that I had a lot of pain behind my knee, it kept me up at night and it was very painful. It went away after the manipulation and I was able to move it more. There seems to be scar tissue under the knee cap, which my doctor plans to clean out when he does my right tkr in 3 weeks. Perhaps seeing another doctor is a good idea. Could be something wasn't 100% lined up right when he originally put it in. That could make a big difference and cause your pain. I know it's frustrating and I'm 50 & have had knee issues for too many years. Good luck & keep us posted.
    tikione responded:
    This is my story too......I had the TKR at age 63--3 years ago. Went through manipulation, many weeks of PT, then year later had arthroscopic surgery. I had a very excellent surgeon. Now my other knee is so bad because of using it more. Pain and stiffness are at times unbearable. I personally think that I have a build up of scar tissue that prevents complete healing. Just my opinion. I refuse to have another TKR ( much to the dismay of my family). What if that turned out like the previous one? I feel sorry for you being so young. This is the first time I have ever joined a message board on the computer but when I saw your message, I was immediately interested. Maybe someone can shed some light for us on this.
    1trogon responded:
    I had my 2nd TKR in January 2009 and I am 70. The first, my left knee, went very well and has caused me no pain. My 2nd, my right, has caused me pain almost from the start of PT and now hurts when I walk up stairs or even mount a curb on a sidewalk. At my 6 month viist my surgeon took X-Rays and said everything was fine. My 1 year follow up is in January and I plan on insisting on a more thorough check-if he will do so. If not I am going for a 2nd opinion. I am quite active and not willing to put up with this.

    garsgirl78 responded:
    Thank you all for your responses. I am happy to know that I am not alone but sorry that everyone has to go through this. Every night I am on my exercise bike trying to pedal away and then my husband does what he can to bend my knee. The pain at night is not as bad but I cannot get the rom that I had before and cant be on my feet for long periods of time. I am going to give it a couple more weeks and then schedule an appointment and ask for updated xrays to see if there is scar tissue behind the knee that is causing this. If he does not want to do it then I am going to request a second opinion. I want to be able to have a day without pain and limitations and I will do whatever is necessary to get there. You would think that 15 months of doing PT everyday would have gotten me there. Sorry I am just so frustrated. Thank you all!
    vj12342 responded:
    I have had a great recovery. I have a De Puy sigma rotating knee and an excellent surgeon here in Denver.

    I have a friend with similiar problems to yours. He had his original surgeon redo the knee which I feel was a mistake. Redo results for him were poor. Do lots of research, seek out the best redo surgeon in your region, and start over.
    ggpdlp responded:
    Hello my dear pain person,

    I can relate to your story like it happened to me. Unbelievable.... I myself just went in for a simple surgery of a torn maneicus No big deal, I am a very active lady and this was going to be the only thing to take the swelling and pain away. Great!! Well, just like you after the machine and 3 months of PT I was still crying with pain. It got to where my PT guy refused to touch me anymore. My leg would go just crazy when I would have it touched or even straightened out for the Dr's. I was in PAIN HELL, wanted to die from the pain. Couldn't even concentrate on what I was doing or even try to get through in a conversation. After 9 other trips to different Ortho specialist, All gave me the same diagnosis.... RSD / RCD. Reflex Sympathetic Dystropy / Regional Complex Dystrophy. I just pray they don't label you with this as your entire rest of your life in pain. I didn't even know what the hell it was, my husband either. So again still figured the Surgeon messed up & got more Dr's evaluations and the same thing. I was labeled to where my insurance wouldn't cover any more first time visits. They will not do any surgery again on your knee. think twice before you try another one as the second will be even more painful then the first. Mine all started when I broke my leg and I just went down hill from there. I would like to keep in touch with you about this and your outcome, if you got great insurance be sure the Dr just wants money instead of realizing the real problem... Again, I went the same road as you. And this is now my life. My e-mail is [email protected] Please if you want to, I would love to know what your outcome is. Good Luck and God Bless. I am in very much pain as we speak so I really opoligize for mistakes in spelling, Its so hard to concentrate on my input. hang in there. I have to move and scream alittle, just like everyday.
    kay54 responded:
    Hey I had a TKR in 06 and the doctor who did it messed it up so bad and it broke and infection flooded my left knee. I had ask him to check it out to see what was causing my problem and he said I did a good job and I am not doing anything else u are here just for the pain medicine. I begged him to help me and he would not. So I went to another doctor I had heard about and he did a revision on me and the infection that was in my leg from the last knee replacement made my bones so soft it broke while in surgery. I was in a cast for about 12 weeks. At first it was good the pt and then all of a sudden it froze and when he looked I had alot of scar tissue. U might look into the scar tissure. My knee and leg and foot stays swelled all the time. I am allergic to nickel and so it is hard to find a knee I can use for me. My doctor did not know if he should go back in and do it again or what so he took my records to harvard college to ask the doctors there and they said it might make her worse to go back in so they are doing a PRP infections in my knees. My right on needs a knee replacement but since my allergie is bad they are doing the same on my right knee to. It is blood plasma they inject into my knees from my blood. I hope helped u. I am still suffering.
    Marizee responded:
    I have been told that the plastic insert in the knee replacement may be worn out and the shards are causing my pain. I can locate that they call replacing the plastic insert a "retread", but i can not find any information about how it is done. Have any of you had this problem?
    Geradine4733 responded:
    I had problems with the tendon but I could bend my knee and my leg is strong. My doctor sent me to PT and the exercises helped a lot. Your problem appears to be worse.

    You have been given good advice - do not have the same doctor do the revision if you decide to do a revision. I wouldn't trust him. Best wishes and good luck.
    garsgirl78 responded:
    Well after all of this time, now the doctor is going to do a bone scan to make sure everything is as it should be with the knee and then later this month he will scope the knee to see what is going on. He will cut out any scar tissue that he believes could be causing the pain behind my knee, manipulate it and possibly release a ligament that he feels is too tight and causing issues. I will have to stay in the hospital overnight and get a big dose of antibiotics to ward off any infections and then I am not sure if I will be back in physical therapy again. I am still riding my exercise bike daily and have bought an eliptical machine, anything to get the knee to bend. My husband takes a heat massager at night to the back of the knee and sometimes that helps with the pain. My other knee is ready to be done too but I have to put that on hold till I can get the right knee done. Thanks for all the helpful information and I will keep you all posted to the outcome. My finger, toes arms and legs are all crossed for good luck.

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