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    lupus and organ involvement
    hatingsle posted:
    Interested in knowing ; Has anyone experienced organ involvement with lupus other than the well known possible kidney failure/problems? Any chest pain/heart issues? My daughter seems to be plagued with severe chest if having a heart attack, and they are blaming lupus, but I think it is interesting that she no longer has a pericardium (the normal reason that pts have chest pain....inflammation of the pericardial sack surrounding the heart. just curious.
    shannielee74 responded:
    My lungs are involved. For years they figured I just had asthma, but now my rheumy believes it has to do with my lupus. I get pleurisy 3-4 times a year. With a family history of heart disease, my doctors (PCP and rheumy) watch my blood pressure closely to make sure there are no problems that way. I also get regular blood work done to check my heart and make sure I have no CV risk.
    Lupus can affect any organ or system in the body. Kidneys are the most common, but anything can be affected.
    Best of luck to your daughter.
    ~~~Life is what happens when your busy making other plans...John Lennon~~~
    Lupylisa44 responded:
    What do you mean by she no longer has a pericardium? What happened to it? Was it removed? I have nevedr heard of that, but just looked it up and it says it can be surgically removed due to scarring and inflexibility. Hmm- I guess you learn something new everyday!

    Chest pain can be also be attributed to pleuritis (pleurisy) or costochondritis. Both conditions are very painful. I have costochondritis which is an inflammation of the cartilage where the ribs attach to the sternum. That area is called the costochondral junction. When it flares up, it feels like I am having a heart attack!

    I also have a problem where my ribs actually pop out of the sockets! This is also extremely painful! It was happeneing a lot and I had to see a chiropractor to get them put back into place.
    I eventually learned to "pop them back in" myself because it happens so often. Unlike before, when I needed a chiro to manipulate them back into place, I now have a condition where the cartiliage has become too flexible which makes it harder for the ribs to stay in place once they have been put back Corticosteroids are the most likely culprit for the increased hyper-elasticity.

    Here are a couple of links with more info on the subjects:

    I hope this helps!

    With love, with patience and with faith, we'll make our way.
    hatingsle replied to shannielee74's response:

    Thanks for your reply. My daughter and I have noticed lately, (in the last year and 1/2 to 2 years) that she seems to be getting more lung involvement as well....pleurisy, pneumonia, as well as asthma like symptoms. I am aware of the kidney probs. but it does not seem like many ppl are getting the chest pains that she feels. Thinking maybe it is more than lupus. Thanks again for your input.
    hatingsle replied to Lupylisa44's response:

    Thanks for your response. Yes, her pericardium was surgically removed due to a stiff heart and ensuing congestive heart failure. Could have been caused by her sle, or maybe just a freak thing with her heart. I was still under the impression though that lupus could be causing her angina, but one doc stated (casually) that sle attacks the pericardium, therefore, I am guessing that the continued pain is probably cardiac driven and not sle. She is a complicated case, so who knows.....was just wondering if others had experienced any of this. Thanks again and best wishes for your health!
    R Swamy Venuturupalli, MD, FACR replied to hatingsle's response:
    It sounds like a very complex situation.
    Several possibilities exist to explain the pain:
    1. Cardiac- retained pericardium, small vessel vasculitis affecting the heart, myocarditis.
    2. Pulmonary- small pulmonary infarction or lupus pneumonitis.
    3. Musculoskeletal- costochondritis etc.
    4. GI- esophagitis.

    You will need to see appropriate specialists to diagnose what is going on. All the best!
    nancyj95 responded:
    I am blessed with autoimmune hepatitis and asthma like symptoms. Had so many problems with elevated liver enzymes for years (before I was finally diagnosed with lupus) they even removed my gall bladder hoping to resolve it. Wasn't 'til several years after diagnosis that my rheumy sent me to a gastro who had the liver biopsy done and correctly diagnosed it. The liver specialist put me on another med, which has for the most part kept it under control. Because of it, I will always be on steroids as the other meds which might put me into remission all effect the liver.
    Good luck with getting the right doctor to do the right thing for your daughter.
    anowlin replied to hatingsle's response:
    I have a 'stif heart' and lung involvement, pulmonary hypertension. I also have several blood clotting disorders which in and of themselves wouldn't be a problem but left to their own devices, anti-phospolipid syndrome

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