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    just diagnosed
    avatar
    lunachix posted:
    Hey guys. After a hysterectomy, and hypothyroidism, now they say I have lupus. The rheumo gave me plaquenil 200mg twice a day (I got the generic), and a muscle relaxer before bed. I just started my first dose today. I am scared. I am 40, and wait tables. I've been doing this for over 20 years ... I don't know if my pain will allow me to continue serving. It seriously is exhausting and draining to not only get ready to go to work - but to actually bust my butt for 6-12 hours a day. I guess I am just wondering if anyone else has been where I am right now? Scared and have no idea what I am doing. Thanks in advance for your time.
     
    avatar
    mopsie48 responded:
    Keep in mind lupus flares are episodic. Might have a bad week and then be fine for months. Change of seasons and sunlight are huge triggers for me and I am so listless when having an episode. Find comfort in knowing it will pass. I am on the same dosage of plaquenil. First time I took it, my hair started to fall out. We tried again (after prednisone made me sleepless and hyper). Second attempt with plaquenil gave me stomach cramping for 3 days; really bad cramping, but it passed at the end of the third day. No side affects at all for the past 10 years on plaquenil.


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