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    ANA cells in lung wash samples? Diffuse Alveolar Hemorrhage?
    avatar
    PixieBSN posted:
    What I know from Pulmonology: I have some form of Interstitial Lung Disease. I have a history of joint pain mimicking RA, labs normal, that remitted with prednisone. MRI showed bone inflammation and synovitis. X-rays normal. A few months ago, I developed numbness in both hands; again, steroids helped greatly, but I have permanent nerve damage.

    Now, the question. My pulmonologist is bouncing me to rheumatology to tell me my lung biopsy results...in July! Not okay by me. I cannot convince him to give me the results.

    So I went to medical records, as I am in the medical field, and obtained the pathology results myself. It showed that I have either Desquamative Interstitial Pneumonitis or Respiratory Bronchiolitis-interstitial lung disease. Neither to my knowledge are rheumatological. It also says that I had a prior Diffuse Alveolar Hemorrhage, which is rheumatological and a form of small vessel vasculitis.

    It also lists % of ANA cells in the lung washing fluid they did; but they give no reference range as to what is normal. My values for 4 samples were 0%, 83%, 38%, & 46% ANA cells. My CD4/CD8 ratio in that fluid was low at 0.83, which seems the opposite of autoimmunity. My blood ANA levels have previously been negative.

    So basically, I can't figure out why I am being bounced from Pulmonology when it shows I have a purely pulmonary disease, unless the Diffuse Alveolar Hemorrhage Vasculitis, the ANA cells, or that CD4/CD8 ratio are significant.

    Can anyone chime in? I'm sure someone of you all had had a bronchoscopy where they did a washing for cell samples, I hope! Why am I going to Rheumatology now to give me my results?


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