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    patmonk posted:
    For decades our government has been pouring billions into research on Cancer, MS and multiple other conditions, quite frankly I think we have got comparatively little bang for our bucks. More and more products from BigPharma which generate enormous profits while patients still suffer and are subjected to many horrible and dangerous side effects.
    Surely the time has finally come when we should AT LEAST be funding objective research into other approaches. Regardless of your personal prejudices this AT LEAST warrants further investigation.
    Just my 2c.
    Patrick Monk. RN Hospice Case Manager. SF. Ca. USA.
    hackwriter responded:
    Dear patmonk,

    The title of your post led me to believe that you were going to discuss the latest news about Tecfidera, and specifically, those European PML cases among patients who took Fumaderm to treat their psoriasis.

    As you are an RN Hospice Case Manager, I was hoping you would share your unique point of view and some thoughtful analysis concerning the circumstances of those PML cases. Fumaderm is a different compound than Tecfidera, though both contain dimethyl fumarate. Those PML cases were patients who had low white cell blood counts after having taken immunosuppressive drugs for conditions not associated with Multiple Sclerosis--and who were JCV-positive.

    The press we've read about Fumaderm and PML came out soon after the FDA approved Tecfidera for MS therapy. Those of us who have closely followed the clinical trials for BG-12 over the past two years have been excited about its stellar safety profile. I for one had decided to try it upon its approval. But now, I will delay that decision after I see some post-marketing data and investigation by Biogen idec.

    I hope you will come back and give us your two cents about the Tecfidera controversy.


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