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    blueeyyes posted:
    I've been going back and forth with my primary doctor for about 5 years now about this. It started with just some pain in my hip and a little in my back. It lasted for a few weeks then was gone. A few months later the hip and back pain came back but this time it brought along knee and ankle pain. I kept telling her it feels like a deep like down to the bone just ache.


    She sent me for a ton of lab work and ruled out Lupus, Lyme Disease, and any issues with my Thyroid. My rheumatoid factor was at a 7. She said it needs to be a 14 or plus to be considered a rheumatologic issue.


    Every time I have an "episode" it seems to be worse than the slat. Right now I'm going through another "episode" and I feel dizzy, lightheaded, I'm having muscle spasms, my toes and fingers tingle, I've been forgetful, hard getting thoughts out when I'm talking, so tired and weak all the time, my balance is off, I'm depressed, I now have 0 sex drive, mood swings, hard time falling asleep, headaches are frequent, I get winded doing simple tasks now, constipation, my eyes are blurry sometimes... This has been my worst episode so far.


    She wants me to see a Rheumatologist. Does this sound Rheumatologic? I don't want to waste my time at a Rheumatologist if they're just going to say my rheumatoid factor is too low, MS does run in my family but I do know that doesn't necessarily mean anything. Should I be seeing a neurologist? Does it sound like I'm on the right path? I don't know what to do? Any thoughts?
     
    avatar
    Stephanie Butler, RN responded:
    Hello blueeyyes,

    I'm sorry you have had to deal with such frustrating symptoms for so long without any answers! I do agree that seeing a rheumatologist is a good next step. They can help work you up for autoimmune issues, which it sounds like this might be.

    Have you been experiencing dry eyes/mouth also? And did they test your ANA level with all your blood work?

    I hope you get answers soon!
    Stephanie


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