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    Pain all over
    JessicaH777 posted:
    I have had chronic pain for many years. I was in a car accident in 2007 which caused me to have neck and shoulder problems. I had neck surgery in 2008.

    For the last couple of months, I have had the normal neck and shoulder pain. But now I also have pain from head to toe. My whole body hurts all the time. It hurts to touch anywhere on my body. I also have extreme fatigue. I am having trouble staying awake at work. I tend to fall asleep as soon as I get home from work.

    Now for the last couple of weeks, my hands and feet are tingly most of the time.

    I also have had chronic diarehea too. But that has been going on for about 8 months so I am not sure if that is connected or not.

    I saw my regular doctor and she is sending me to a Sleep Specialist and a Neurologist and a GI specialist.

    She wasn't sure what is causing these symptoms.

    I think that it sounds like it might me fibromyalgia. Does anyone who has it think this is what it sounds like? Or any ideas (for me to discuss with my dr) of what it sounds like it could be?

    Hoping one of these doctors will be able to help me. Thanks for any suggestions anyone has.
    davedsel57 responded:
    Hello and welcome.

    Your symptoms do sound to me like you could have firbromyalgia. Hopefully the neurologist can offer a definitive diagnosis and treatment plan.

    WebMD also has an excellent Fibromyalgia Community here:

    I hope you can get treatment and relief soon.
    Click on my user name or avatar picture to read my story. Blessings, Dave
    annette030 responded:
    I have FMS, and it could be what you have, but a doctor usually has to do a lot of different tests to eliminate other possible causes of your symptoms.

    My favorite medical site for FMS is at . I have found lots of solid information there. It is not an interactive site like this one, just lots of articles about FMS and its diagnosis and treatment. You can print out anything you find there that seems to resonate with you, and show it to your doctor. Dr. Robert Bennett, MD is the rheumatologist there, he is well known in the FMS community as a doctor who treats and does research on FMS.

    Take care, Annette
    JessicaH777 replied to annette030's response:
    Thanks so much for your replies.

    What kind of tests would the dr need to do to figure out if it is fibromyalgia?

    Hoping to find out more when I go to see the neurologist. Also have a follow up appointment with my regular doctor to go over my blood test results.

    I will check out the other message board and website.

    annette030 replied to JessicaH777's response:
    My doctor did the following just to rule out any other possible diagnosis when he decided I had FMS: Thyroid panel (TSH, T3,T4), CBC, ANA, RA factor, Liver panel including tests for the various kinds of hepatitis, TB skin test, and HIV. I had already had MRIs and CT scans done of my head and cervical spine due to other problems, so he didn't repeat anything. That covers thyroid problems, Lupus, rheumatoid arthritis, various liver problems, TB, and HIV/AIDS. All of those things can cause similar symptoms at some point in their development: pain and fatigue.

    My doctor had also taken care of me for nearly 10 years, so he knew me and my family pretty well. That makes it easier for him to make a diagnosis.

    Good luck to you.

    Take care, Annette
    JessicaH777 replied to annette030's response:
    Thanks Annette for the reply.

    My dr just did a bunch of blood tests to try to find the cause of my symptoms. I will find out the results tomorrow.

    And then off to the sleep doctor on Friday. Not looking forward to the long drive though. :( I am sure I will hurt even worse.

    Thanks again for your reply.
    annette030 replied to JessicaH777's response:
    I did a sleep study also, I forgot about that one. The neurologist who ordered it just told me it was fine, but never gave me the report. It turned out, I have so many Alpha wave intrusions into the Delta sleep patterns that it supported my regular doctor's diagnose of FMS. I didn't find out until SSA requested all my medical records for SSDI a few years later.

    It was a very interesting test, I never imagined being able to sleep hooked up to all those machines and wires. I was also a night nurse at the time, so my sleep schedule was opposite the norm. Of course, once I finally went to sleep for a little bit, they woke me up and told me they had what they needed and I could go home. It was just before 5 AM. I had fallen asleep just 3-4 hours before.

    But, like I said they got a bunch of good data. I would ask for the report, and also read up on the process and what is normal and what isn't.

    Sleep apnea needs to be ruled out, as it can cause some symptoms similar to FMS. That is one of the reasons they do it. Sleep apnea is fairly easily treated and things improve fairly quickly if all you need is a CPAP machine.

    Take care, Annette

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