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    Breath holding spells
    avatar
    romangirl72 posted:
    I'm new here. Usually linger on pregnancy 35 & over because I'm expecting at holidays. However, I do have a DD who just turned 1 little over week ago. She has been having "breath holding spells". If you've never heard of this (as I hadn't) search it and you will be amazed that this actually exists and it's frightening!! She's had them since a few months old & we've gone to every doc, specialist, etc and had EKG, blood tests, etc. to rule out heart, anemia stuff (which can be linked). We saw a neurologist who summed up no need for further tests on brain, EEG, etc. unless she shows signs of seizures. Yikes!

    But I wanted to check here if anyone else has struggled with this as we still get very concerened. The last two nights she had bad ones...they are usually stemmed when she gets frustrated instantly and she goes into a normal infant cry but holds breath up to 30 seconds, turning blue, then falls limp, passes out. Last night, she had her first one which included her little body going stiff, little shaking as if a small seizure and then passed out cold this time for almost a minute. I HATE them! I am so scared she will not come out of one of these one day. Everything we've read up on & dr's we talk to say these are common & they "grow out of them" after a couple years old. I honestly feel that dr's don't truly know enough about them & that's what frightens me. Anyone out there have experience or feedback? Help!

    Heather
     
    avatar
    Lucasmommy1 responded:
    When my son was 2 months old he had his first breath holding spell. Since then we learned that it can be geneic. My mom said I was never diagnosed with it, but that I used to do the same thing. She said by 5 years old I stopped completely. My son doesn't have them often. When he does it scares me to death. It's almost like he's trying to breath and can't. We blow in his face, and he starts breathing again. We also were told that as long as he wasn't having seizures, not to worry. I still worry.
     
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    thevwmom responded:
    Did you tell your Dr. about her going stiff? From what you describe of that it sounds very much like a seizure. what symptoms does she have after she wakes back up? Is she lethargic or tired? Does she get her color back? How old is she?
    When ever the kids I take care of have seizures we are instructed to time them, You should take note of each episode what time of day is it was, and how long it lasted, all the symptoms you can remember, before and after, and give it to your doctor.
    If she is having seizures then maybe they can get her on some medication to prevent them before they cause and damage.
    best wishes
     
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    breezy_83255 responded:
    I've never heard of this! I know older children sometimes hold their breath as a form of tantrum, but I didn't realize it's something that can affect a child so young. Do you blow in her face or splash water on her when she starts one? My uncle used to hold his breath as a toddler (his were tantrums). My grandma would splash cold water on him. Cold water makes us instinctively suck in. I have no idea if this would work in this instance, though.

    I second what pp said- be sure to let her doc know that she is stiffening, shaking, and passing out. That sounds like something to be worried about! Good luck!
     
    avatar
    tammy_1982 responded:
    New here, too. Loooonnngg time lurker, though. A friend of mine had this happen with both of her children. They would start crying as infants, turn blue, and go limp.Every test was done on them, and everything came back normal. Her son was still doing this around the age of 5. He'd get upset, hold his breath and pass out. By the time she had her 2nd child, she almost expected it. I hear it can be genetic, and relatively common!
    Me(27) DH(28), DD1(8), DD2(3), DS(21 mo.)
     
    avatar
    romangirl72 responded:
    Thank you everyone for your suggestions & replies. Yes, we have been in contact with our pediatrician on her breath holding this whole year & have had about every test done to rule out serious stuff, everything comes back normal. The children's neurologist told us that it is normal for children to have small seizures/stiffining during these episodes of breath holding. So, upon watching our DD's first stiffining I was alarmed at the sight but aware that it is part of it. I will continue to watch these & if the seizures or stiffining increase take her back to neurologist to perform EEG.

    These are not fun! I do not wish them upon anyone.
     
    avatar
    An_222961 replied to romangirl72's response:
    My granddaughter is having this. As a physician the idea of an ice cold wash cloth to the face sounds reasonable but this is not a medical opinion!
     
    avatar
    loribaby21 replied to An_222961's response:
    know exactly what you're talking about...i used to do this when i was a baby and would get mad and throw a tantrum...i wasn't that bad but my younger brother (who is 8 years younger then me so i remember these incidents perfectly) would hold his breath until he passed out...numerous times the ambulence was called and he was taken to the hospital for all sorts of tests...everything came back normal. he outgrew it and is a perfectly healthy 15 year old now.

    my almost 14 month old daughter does this as well when she's upset or frustrated...she cries and holds her breath...her face will be bright red, completely stiff and on the worst occassions her lips have started to turn blue but she hasn't passed out yet (knock on wood!) i'm not sure why they do this but it's not uncommon and it is extremely frightening!

    my aunt told me when my dd first started doing this to blow in her face...sometimes you have to do it multiple times, huge breaths of air but this forces them to take a breath and it's really helped for us. i hope they outgrow this sooner rather than later because it is frightening!
     
    avatar
    bhsmoms responded:
    I have a one year old that has started having BHS. I had no idea there was such a thing. My DS has spells that are sometime severe including a seizure. I felt so frustrated being sent home told that he would be fine and not to worry. I can accept that he will grow out of it. But anyone that has watched their child go through it knows it is very traumatic. And while I understand that there are some children capable of holding there breath in a tantrum, there is nothing like watching your baby trying desperately to breathe when his body takes over! I have started a support site for moms and families dealing with BHS. The one thing we can do until they grow out of it is support each other!
    Please join us if you'd like to! We're here for each other!
    www.breathholdingspellssupport.com
     
    avatar
    psalm108 responded:
    Hello my name is Chantal and i am a mother of two a girl ( and my little boy (18m). My son now 18m had his first spell a week before his first birthday. it all started the morning when he fell and hit the back of his head strange enough it was a short cry with no sound my mom wet his face and he was fine that was at about 10am he slept at 12 until 14:00 and then at about 15:00 I was busy tidying my daughters bedroom when my daughter tried to stop him from climbing on a cupboard when she shouted mamma there is something wrong with daniel so i ran when i got to him he was blue. I ran with him to my mom. My mother checked his airway it was clear but his eyes were open and went like a glossy color it was frightening i thought he was gone. I ran outside and stopped someone driving past and with that a man ran up to me took my baby from me and performed cpr he can by immediately. I rushed with him to the hospital and they did brain scans EEG's and all came back clear a nurse at the hospital told me that it seems to her like breath holding spells i must ask the doctor to check his iron. His iron was low but not much so without a family history my child was thought to have epilepsy. I cried bitterly it was very hard for my daughter her marks dropped at school and her hair started falling out terribly. I prayed and asked God for His Grace and mercy after his second episode march 2015 but this time his whole boddy went into a spasm. the doctors wanted to put him on seizure meds and i have heard of bad side effects so i was scared my mom told me my little one was not having an epileptic fit it was not necessary so i listened and carried on praying. Believe it or not God answered my prayer a week after his first episode he slipped and fell back and hit his head he cried but no sound came out i blocked his nose and gave one short blow in his mouth sort of like CPR and he gasped for air. It was scary and i felt helpless just watching him and not knowing what to do now i can help him to gasp for air so every time he cries without sound i block his nose and blow in his mouth and it really works. I really hope it works for you too. i was becoming over protective worring he was going to get hurt and stop breathing again now i can leave him let him play:-)
     
    avatar
    psalm108 replied to thevwmom's response:
    Hello my name is Chantal and i am a mother of two a girl ( and my little boy (18m). My son now 18m had his first spell a week before his first birthday. it all started the morning when he fell and hit the back of his head strange enough it was a short cry with no sound my mom wet his face and he was fine that was at about 10am he slept at 12 until 14:00 and then at about 15:00 I was busy tidying my daughters bedroom when my daughter tried to stop him from climbing on a cupboard when she shouted mamma there is something wrong with daniel so i ran when i got to him he was blue. I ran with him to my mom. My mother checked his airway it was clear but his eyes were open and went like a glossy color it was frightening i thought he was gone. I ran outside and stopped someone driving past and with that a man ran up to me took my baby from me and performed cpr he can by immediately. I rushed with him to the hospital and they did brain scans EEG's and all came back clear a nurse at the hospital told me that it seems to her like breath holding spells i must ask the doctor to check his iron. His iron was low but not much so without a family history my child was thought to have epilepsy. I cried bitterly it was very hard for my daughter her marks dropped at school and her hair started falling out terribly. I prayed and asked God for His Grace and mercy after his second episode march 2015 but this time his whole boddy went into a spasm. the doctors wanted to put him on seizure meds and i have heard of bad side effects so i was scared my mom told me my little one was not having an epileptic fit it was not necessary so i listened and carried on praying. Believe it or not God answered my prayer a week after his first episode he slipped and fell back and hit his head he cried but no sound came out i blocked his nose and gave one short blow in his mouth sort of like CPR and he gasped for air. It was scary and i felt helpless just watching him and not knowing what to do now i can help him to gasp for air so every time he cries without sound i block his nose and blow in his mouth and it really works. I really hope it works for you too. i was becoming over protective worrying he was going to get hurt and stop breathing again now i can leave him let him play:-)
     
    avatar
    psalm108 responded:
    sorry i also meant to mention that you must keep in mind their lungs are very small so only a little blow of air and its like mouth to mouth not CPR
     
    avatar
    psalm108 replied to thevwmom's response:
    sorry i also meant to mention that you must keep in mind their lungs are very small so only a little blow of air and its like mouth to mouth not CPR


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