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Your family is in our prayers. Hope to hear from you. Leslie-(mom) Paul-(dad) Keegan 9yr (our son) Ema 2 yr(our daughter)
My email is [email protected] if you would like to talk.


At the current time this board does not have a WebMD health professional to answer community members' questions as Dr Parker passed away in April.
I'd like to suggest that you use the WebMD search engine as well as the Google Scholar search engine to look up peer reviewed medical journals and texts.
We do have an Arthritis group of boards for community help with your questions.
Good lucK!
- Annie



I am very familiar with Legg Perthes. Our son was diagnosed in 1994 with bilateral perthes. He was nearly 7 and was considered a poor prognosis due to whole head involvement. We were fortunate to have a doctor that was progressive in his treatment and he educated us along the way. The outcome for our son was great and today, (he'll be 22 next week) he is extremely active, is an extreme snowboarder and you would never know he had had the disease.
Proper treatment of the disease-not just managing symptoms- is one of the keys to a good outcome. The other factors are age and severity. In your son's case, his age is a factor against him. The skeletal system, while soft, has an easier time remodeling bone, but as they move toward puberty, treatment plays an even greater role so that good alignment, containment, and removing the pressure from the joint become critical.
When our son was going through this, we knew of no one and there was nothing on the internet. I wanted parents to know that even with a poor prognosis, your child can have a good outcome, so I started the Legg Perthes Support Group, Int'l. and since 1999, we have helped over 3,000 families worldwide. Because I keep the group private-invitation only-to protect the kids, you have to email me for an invitation to join. It's simply a security feature, but I'll be happy to send an invitation to you. We have a ton of information on our site, loads of encouragement and we have monthly online chats with a well known pediatric orthopedist from the Rubin Institute of Advanced Orthopedics at Sinai Hospital in Baltimore. The RIAO is known world wide for their work in limb deformities and the chat is wonderful for parents to be able to address their concerns.
If you would like an invitation - or anyone else on this site searching for information, please feel free to email me at [email protected] and I'll be happy to help you.





At this time my son is 15 and he will skateboard and ride bikes sometime (I am noticing it is less and less these days though). He does LOVE to ride his birtbike, he even jumps it, it does hurt him but he will take some tylenol before &/or after he is done. My son is very strong and has never let this hold him down. He played little legue baseball for a little bit (was never a fast runner so he got out alot) he still loved to play.
For now everything is good, he still complains of a little pain and he does have notes of file at school, that if he can't run or play a game any longer he needs to be able to pull himself out, but I let him make that decision not the teachers. He will still run even if it hurts because he wants to be the fastes, he is pretty fast.
Try not to worry to much, it is an obsticle but kids are stronger then we think. Everything will be ok. If you want to talk to me my email is [email protected] , i live in California.
My worry right now is that they said in the past that the disease isn't passed to our children, but we found out that is not the case. I am trying now to find out more information on the genetics of the disease. Will my son have to worry about this with his son?
We were told that by age 50, about half of people with Perthes in childhood have had a hip replacement. Here's hoping that with medical advancements, they are able to do more and more for these children as they get older.
Just wanted to say I am a 56 year old male who has dealt with this illness since the age of 9! At that age, I was given crutches and a waist brace that was connected to a buckle on the back of my right shoe. I was a typical bad boy in that I removed the buckle during recesses and lunch periods and actually played football in the school yard with my crutch tips! Needless to say, my hip joint did not heal perfectly and was told I will have big problems when I get older. Through the grace of God, I have been able to maintain a very normal and active lifestyle since! I have always been crazy about athletics and have slowed very little over the years. I jog frequently, run 9-10 minute miles, play, coach and referee soccer, play tennis, ride bikes, water and snow ski, etc. Throughout all of this, I have dealt with pain and stiffness on a daily basis for 47 years!! It has simply become a part of my life that I have learned to accept and live with. The key element to my active life style has been to learn how to manage the pain and stiffness through stretching and exercize every day. I have taken Advil as needed. That is about it.Whenever I go a few days without exercize, I really begin to feel the pain and stiffness in my right hip!!
As I am writing, my hip is very stiff and painful due to a weekend of wood cutting and stacking of (1 cord of wood)! I did not stretch before and I really paid the price for my neglect! I awoke at 6:00am this morning, stretched and ran for 25 minutes on my tredmill. I know tomorrow I will feel much better because of this.
I just wanted to let you know that many of you can still lead a normal, active lifestyle through faith and proper pain management.
I do know as I begin to naturally slow down with age, a hip replacement will most likely be inevitable. However, the doctors will have to drag me kicking and screaming!!
I am so pleased to know there are websites available to discuss this illness as it makes me feel I am not alone!
Best of luck to all of you and God bless you!

Can anyone bring me some uplifting news on their young son?
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