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    Undiagnosed
    avatar
    An_267534 posted:
    Hi.I'm soon to be 70..however.my neurological condition started.in 2003..
    It started..as just a balance issue..I'd was into..walls..but..progressed to..affecting my writing,speech and I also developed jerky movements.( NOT tremors)
    After seeing at least..20 different Dr s..having every test come back negative..I finally turned to a holistic Dr..
    She..too had no idea what I had..
    She took many blood vials..but STILL NOTHING..
    I've tried every med..known..I even tried a med called...LOW DOSE NALTREXONE.
    Without any help..
    As a matter of fact..I've gotten worse..
    The ONLY diagnosis I've ever gotten was.senile chorea..which my neurologist said is something they call.if they have no idea what is wrong..
    Every Dr has given up..on me..
    Any ideas out there..
    Oh yeah..one thing that is important to me but doesn't seem to be important to ANY Dr..is the fact..that..my movements stop when I lie down..on my right side!
     
    avatar
    editor_morgan responded:
    Hi there and thanks for posting,

    Coping with a scary diagnosis is definitely one of the hardest things that a person will have to overcome in their lives. However, there aren't many resources out there for people who remain undiagnosed but still experience the same debilitating symptoms.

    Have you spoken to a specialist? If you need assistance in finding one, here is the link to WebMD's Physician Directory: http://doctor.webmd.com/ . Perhaps, you can find one in your area.


    Please keep us updated, and most importantly, DO NOT GIVE UP. You deserve to have your problem recognized, diagnosed, and treated.



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