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    I CAN'T WAKE UP :(
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    Tony5573 posted:
    I need some advice... I am literally unable to wake myself up in the morning. My parents always had to FIGHT to wake me up and now my poor fiance' is the poor soul that has that unwanted task... Between not being able to wake up and ALWAYS ALWAYS being soooo tired, I'm just fed up... This is going to eventually result in losing my little lady and/or my job... I have tried megaphones, loud speakers, vibrating pillow alarms, people hitting me but NOTHING... I barely as much as flinch... This is getting sooooo sad... NOTHING wakes me up... I have been to a neurologist in the past with little help from him... I went to a sleep doctor for the first time when I was 17 and his diagnosis was that I was just overweight... (I was 5' 7" and 220lbs.) I went back some time later, now weighing 165lbs and he just couldn't figure out what my problem was... He called it Idiopathic Hypersomnia. I was given Provigil and that was just not the answer... It worked for about 2 days but after that I was losing my vision, not breathing well, hearing things and worst of all, NOT WAKING UP!! ANNOYING! I went to another sleep doctor and took another sleep study... I was "diagnosed" with Narcolepsy. I have been on everything now from Provigil, (again) Addoral and Dexedrine, (Including "quick release tablets.) They all have little effect on me... (unless you're talking side effects...) Now here I am, 4 years from my first sleep study and I havent found any relief... Does have any advice?? If not on the treatment of my problem, maybe advice on waking myself up??? I sincerely appreciate your time in reading this and hope there is someone out there with some good advice that will help! Thank you!
     
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    dolphinedsea replied to dolphinedsea's response:
    Another thing I read was that some people cannot wake up to go to the bathroom and wet the bed. I've not wet the bed, but often I sleep though the urge and wake up with my kidneys in substantial pain.
     
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    healthfreakgrl responded:
    Hey, I had the same problem while I was in college (I had lots of anxiety and stress when I was in school). Do you have anxiety or are you pretty stressed out right now? Now that I am out of college, I still have a hard time getting up in the morning (shutting off my alarm and resetting it so I can sleep ten more minutes etc). but no where near as bad as it was for me before. Do you go to bed fairly early? I used to stay up late and that is why I would sleep in and not hear my alarm. I religiously go to bed at the same time every night now so that I can get up at the same time in the morning. I think my body is just really sensitive to sleep and staying on a rhythm or a schedule.

    Anyways, a couple other things I have done for myself to help: keep my window open so the sun shines in, my alarm clock is across the room for me, like I said going to bed early and at the same time everyday even on weekends, and most importantly I have worked on getting my anxiety problem fixed which I really think there is a big correlation at least for me.


    My old roommate had narcolepsy and she said a lot of doctors dont believe in it so it can be hard to get that diagnosis. But I know she was put on some drugs that helped. Good luck hope that helps a little!
     
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    USMCsniper replied to Aatif M Husain, MD's response:
    Dr.Husain,
    Your suggestion to keep on trying with a sleep specialist offers some hope. I will keep my responce in outline form to save repetition.
    1) Mono.at age 18 (recent work on retro-virus and imun system).
    2) Two tours in Vietnam USMC sniper.
    3) thirty years in cardiac pacemaker business-24/7 on call never got adaquate sleep.
    4) Disability 100% in 1998 after 15 hospital admits for acute depression.
    5) Current DX Bipolar II, PTSD, Idiopathic hypersomnia.
    6) current psyc. problems under controll, good physical health.
    7) Stimulant meds. work until tolerance builds up then too much is required.
    Sleep study showed no apnea, EEG showed continuous cycle in and out of REM sleep.
    Suggestions for idiopathic hypersomnia welcomed.
    Thank you,
    Sniper
     
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    Byroney_WebMD_Staff replied to USMCsniper's response:
    Dear Sniper (USMCsniper),

    Could you repost this in a new thread? That way it's more likely to get an answer than behind this old post.

    Thanks so much,

    Byroney
     
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    beenbetterb4 responded:
    I also have narcolepsy and sleep apnea. I have had 5 sleep studies done and the only thing that helps me is taking the provigil However I take 3 tablets 400 mg firdt thing in the morn. If I take one in the morning and one later in the day it does not help. ask your doctor if you can try taking both of your provigil at the same time.
     
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    An_207056 responded:
    It sounds as if you have Polysymptomatic Idiopathic Hypersomnia with long sleep time.If that is true, you will very likely have a "less than satisfactory result" from medications/stimulants. (But, if you remind me later, I'll give you some tips on that.)Toward the end of your sleep cycle, when you should be waking up, instead of having extended bouts of REM sleep when our bodies are so relaxed, we are unable to move, but our brains are alert, you have drifted into extended periods of slow wave sleep, where you are still able to move, but it takes an act of congress to get you fully awake. Even then, you are often in a state called "sleep drunkenness." Supposedly, this Polysymptomatic Idiopathic Hypersomnia is a very rare condition. Maybe that's why we get so little help. My impression is that my doctor would rather have a tooth extracted, than show up for one of my appointments. It has also been my experience to educate him on the latest medications. And,I'd be willing to bet that he couldn't tell you what I have just told you. Besides, even if he could, he acts as if telling a patient anything about his or her diagnosis will only serve to fuel their already overctive, and not based on empirical studies, imaginitive, personal opinions. Here is my advice. Try it. I'm doing much much better. The longer you allow yourself to sleep, the longer and the deeper your extended periods of slow wave sleep will get. The longer you use melatonin, the more REM sleep you will experience.
    Try to disrupt your sleep pattern. Sleep no more than 3 hours at a time, and never more than 6 hours a day. Also, figure out a way to get too much REM if you have to. You must crowd out the slow wave stuff. Melatonin should do it. Try both the sublingual, to put a burst of REM down at the beginning of your sleep, when even normal sleepers don't have a burst of REM and follow it up with a 6 hour extended release melatonin.
    Experiment by setting your alarm to different times over the 3 hours I told you to sleep. You should wake up fairly alert each time, as compared to how you normally awaken. True, if you don't get up and if you choose to stay inbed, you can fall right back to sleep easily. What you are learning from this is - The continuem of REM and NON REM sleep you are experiencing is backwards. You are supposed to be having your "Undead Sleep" (that's what I call slow wave sleep) at the beginning of your sleep period,) not at the end of sleep. Trying to wake up from slow wave sleep, is like struggling to come out of a coma. Never read anything about excessive sleep unless it came out within the last year. You'll see a lot of stuff that is sadly, badly, out of date and you will just get confused. I really do have to sleep now. But don't forget to ask me abut how to get clear of brain fog, medications I have tried, how to keep from becoming medication tolerant, etc.
     
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    Spamerella replied to SnoSleep's response:
    Interesting. I do the same thing. I have the generic Ritalin next to my bed, and take it as soon as the alarm goes off.

    I don't have a problem as bad as the others described here, but I am helped by having an alarm that goes off twice. It's meant for a bedroom that has two different sleepers. I have it set so that first the news comes on, which gives me ten minutes until the buzzer goes off.

    I have the worst problems when I wake up too early, say at 3:00 or 4:00, rather than the 6:00 that I want. After I go back to sleep that second time, it's really hard to get up. So for me, the problem is not really what happens when the alarm goes off, but what has happened a couple of hours before.

    This is obviously not the terrible hypersomnia problem that some of you described, but I bet it's a common problem for a lot of people.
     
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    MoonHoweller replied to a_marieroc's response:
    I thought I have been going crazy. I have had this problem for a while but it seems to be getting worse and more frequent. Especially when I take a nap. I feel paralyzed. I am conscious, I try and try to move but cant. I struggle to open my eyes and once I do it is a battle to keep them open, but still cant move. If I fight hard enough I eventually start moving. I hear music when I am in this state. Great ballads, hims sand songs. At lest I am entertained. I feel that if I relax and let the music run it course I can wake up easier at the end of the song. But I feel a presents watching me, move around me. I know when its going to happen. I hear strange noises as well. I think I am going nuts.
     
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    Byroney_WebMD_Staff replied to MoonHoweller's response:
    Dear MoonHoweller,

    I would definitely encourage you to get a consult with a sleep expert. This article on Narcolepsy Symptoms mentions that it includes excessive daytime sleepiness, cataplexy, hallucinations, and sleep paralysis.

    Since those last three symptoms sound like some of the things you mention experiencing, I think it would be worthwhile for you to get checked out.

    Best wishes for better sleep,

    Byroney
     
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    Sojourner11 responded:
    Hi! I've had 5 sleep studies done on me because I simply could not stay awake in the day time. I lived on No Dose. One time I took 12 No Dose (200mg.caffeine each) so I could stay awake at the wheel while driving a distance to get to a doctor. I told the doctor and he had my license suspended for awhile. My problem was serious. At first they thought it was sleep apnea. Then they thought it was narcolepsy....etc. Now they know that, although my heart is very healthy, the message everyone's heart receives to stimulate the heart to pump, doesn't always work. Carbon dioxide builds up in my brain and causes me to be so sleepy. I now sleep with oxygen pumped through a Bipap Avaps mask. I am alert now and have had my license returned to me. Stay with the program and pursue the real reason as to why you are so sleepy from the get-go. I sincerely wish you good luck. Don't let it just go on. Carbon dioxide build-up destroys brain cells.
     
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    ladydi891 replied to sierra2004z's response:
    You need to find a good dr. who is familiar with treatment of fibro. I had to go on permanent disability for the same problem you are having. I struggled for several years to work but missed so much due to pain and exhaustion, not knowing what was wrong with me that I almost lost my job. Finally I went on disability, when I no longer could work at all. Treatment can include antidepressant, muscle relaxer, pain med. warm water pool exercise, massage. It helps to research and find out all you can about it. check out fms.org. Hope this helps
     
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    bsue1989 replied to firechicken71's response:
    it sounds as though you have a condition called sleep paralysis..
     
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    bsue1989 replied to sierra2004z's response:
    the fibromyalgia has attacked you thru your stress level and depression.. my son has this problem he is 21 now and i worry that his life is going to be so hard because of this, i wish they had a fix for this..
     
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    zadet; replied to sierra2004z's response:
    Check out clinicaltrials.com. My daughter and I have the same.They are working hard to find the answers! Good luck
     
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    Kimberly2871 responded:
    You are not alone. I have narcolepcy also and I am sticking with the medicines presribed. I am also on a c-pap for sleep apnea. You should also see a counselor to talk about this. I have found talking to a therapist very valuable as the doctor can take notes on your behavor. You have to have patience with your medications prescribed and give them a chance to work. Don't give up and see a therapist for mental health as for me my sleep disorders made me feel depressed because I was literally sleeping my life away. Provigil is a great drug for wakefulness but your doctor may add something else also. Weight gain is easy when you sleep all the time. I would also get your thyroid checked to see if you are hypothyroid or hyperthyroid, both can make you feel fatigued, but you need to take care of yourself make yourself get up and go get evaluated. You have to do your medical homework. Take care of yourself and your relationships with people will definitely improve!


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